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Help please :(

Tue, 06/05/2018 - 09:41
Hi guys, It's my first time on here but I could really use some advice, as I feel like I'm losing my mind. A few years ago I started having 'episodes' which were termed ‘panic attacks' at the time, as I was getting over PTSD, so that was what was seen to be the most reasonable explanation; as they would generally be when I was tired or stressed, but sometimes for no reason at all. Then it all went quiet for a year or so. In March of this year, I was taken to hospital: I hadn't been feeling well for about 15-20 minutes - the left side of my neck was hurting (I've got a lump there so it seemed like it was because of that, and I didn't really pay it much attention), but as I went to sit up, I got like a kaleidoscope effect in my left eye with flashing dots, my hearing went in my left ear (I have otosclerosis, so this happens occasionally)and my heartrate shot up (I've been having breathing problems and palpitations for a while now, but was told it was down to my Hypothyroidism), and I went totally numb down my left side. No headache, but I felt like I was going to be sick and there was a 'rush' of adrenaline and nausea. I got really cold (my 'episodes' always start the same: I feel like cold water is being poured over my head and sometimes the sensation of being pricked with pins or my skin crawling, moving from the top of my head and tips of fingers and toes inwards), and then really hot and started trying to take my clothes off. Generally, when I have ‘episodes’ I start to shake and jerk, but I can see and hear things going on around me, but not always respond. I was treated at the hospital for suspected TIA, but when the CT scan came back normal they said it was a just a migraine. The numbness has only just subsided fully. Since then I've had an MRI come back fine, but my EEG's have shown (first EEG) 'irregular slow waves over left temporal regions', and then my sleep deprived EEG: ‘Focal sharp waves over the left temporal region, with findings suggestive of focal epilepsy. During hyperventilation more theta waves, but no definite epileptiform discharges'. I should also note that since this episode, I have been having a lot of trouble with my memory, my spelling and recognition of things and words is a lot worse, to the point I'm writing things that don't make sense (my university is convinced I’ve suddenly developed dyslexia); and it's very frustrating as I have just done my Uni exams. I'm also having intermittent episodes of deja vu and jamais vu, coupled with confusion, and 'staring' episodes, flashing lights in my left eye (yesterday for the first time I was woken up by bright flashes (four times in one night, with the last being a flash coupled with gasping for air, then I was fine for the rest of the night..), occasionally weird ‘rotten’ smells, and I've developed a slight stammer and slur my words sometimes. My sense of time has completely gone – I can’t remember some things moment to moment, and I keep forgetting where I am and what I’m doing, and also, who people are. I've also been having what I can only refer to as 'sleep apnoea' where when I'm drifting off to sleep, I can only assume I stop breathing and I jerk awake, gasping for air. It's happened a couple of times during these staring episodes too, where I don't notice that I'm holding my breath. I was beginning to think that these were 'vacancy seizures', but most of the time, I can sort of feel it happening - it's like I'm being drawn into the stare, like I can't stop myself - it only lasts a few seconds (10 at the very most), and mostly when I'm tired or stressed; but sometimes I snap out of it, and sometimes, if I’m in the middle of something, I continue doing it, but just become really clumsy or stop mid action. My boyfriend and his family say my facial expression changes and I look a bit 'gormless'. It’s like everything is suddenly in slow motion. Sometimes people will be talking to me and I have no idea, and sometimes I can’t understand what they are saying to me, even if I'm looking straight at them (I wear hearing aids, and lipread, so this shouldn't be a problem for me!). I’m getting very little sleep currently, and have been since this incident, and my Neurologist has just sent my doctor a letter saying that he 'believes these symptoms are most likely functional/mental health related’ – I feel like I’m going mad.. Everyone I speak to in the medical profession seems to think that I’m just a hypochondriac. I had Meningitis at 18 and nobody believed my symptoms, right until I had the lumbar puncture done! I had febrile convulsions as a child too, so seizures surely wouldn't be that hard to believe? Can someone please just level with me. Am I going mad? Does anyone else have anything like this? It's making me really upset and I feel so isolated :( I just want to know what's wrong with me.

Comments

Omg... This is so close to

Submitted by Laughingtree on Mon, 2018-09-03 - 20:47
Omg... This is so close to what is happening to me. I had a bad accident where I was rear-ended. I don't think you are crazy. I'm so glad I'm not the only person this is happening to. I'm being tested for absence seizures. I have constant ringing in my ears. Headaches. Occipital nerve damage. No answers yet for me. But I blank out. I jerk awake. I stammer. I was a teacher and I misspelled school during a psychiatric test. I have to search hard for words. For instance I couldn't think of asparagas and kept describing it and telling my children where it was located while the looked at me like I'm crazy. I am being sent to a psychiatrist because they claim it is a PTSD variant. He says I'm historically traumatised and getting hit by some lady going sixty at a red light is not showing injuries appropriate to my symptoms. Ironically, my husband was in the same car and he sustained a collapsed vertabrae but I'm not injured enough? I have had one EEG but have not heard back from the doctor yet. But during the hyperventilation part I kept losing consciousness and jerking awake. Hours after, I started having a really bad panic attack and migraine. The next morning my arm was jumping and then I developed vertigo which is still happening now. I'm so angry at these people. I don't know what to do..

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