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Does anyone have rapid heartbeats before a seizure??

I am a 26 year old female and have had seizures for the about
6 years now. The cause is unknown. Every month or so I go
through "episodes" of rapid heartbeats. After a day or two they
stop and don't start again for another month. Other symptoms
include A tingling sensation, mood swings, and a really bad
taste in my mouth no matter how much listerine I gargle.
I don't always go into a seizure that lasts long but I have gone
into a grand-mal a couple times. The Dr. I've been seeing
doesn't think these episodes are seizure related and prescribed me paxil and then effixer. Neither worked and this Dr. suggested I see a shrink! I am changing to a new Dr. and am willing to have the brain surgery to stop these and have a normal life and eventually have children.

Comments

Re: Does anyone have rapid heartbeats before a seizure??

Our 15yr old was doing the same things, the only way her Neurologist picked up what was happening was by putting her on a EEG/EKG monitoring unit that was sent home with us. It picked up that she wasn't nuts at all, her heart was going into different types of arrythmias during seizures. The other issues with your mouth well I will tell you this I've had epilepsy since a child I am in my 30s now and still get cotton mouth and palpitations right before a seizure is about to happen. My Eptologist said this is an aura. So I would agree to get a second opinion for sure. Not every siezure patient has the same auras. On your heart issues I would go see a cardiologist and at the very least have a monitor put on. They will have to program it to pick up PVC's and upper chamber arrythmias, this last monitor went off on its own, and it also had a button to push if she was having an episode. Hope this might lead you in the right direction. What we were told is that our daughters seizures have been happening not just in the typical places of the brain that happens with JME patients but also in the area of brain that controls the heart. Its something to look at. Good Luck

Re: Does anyone have rapid heartbeats before a seizure??

Hey missy_hp. My name is alexandra and im 13, i have rapid heart beat and i looked up rapid heartbeat and the proper diagnostic is called tychiacardia. I never had a seizure so i dont think rapid heart beat relates to seizure. I had tychiacardia for a long time and im on a pill called Nadolol, i have to take half of it every night before bed. You should maybe try going to a cardiologist. I have been rushed to the emergency room alot, and i had to go to Westchester Medical Center cause my heart was beating 300 beats per minute when its only suppose to be 60-100.

 

-- Hope that helped you :-)

And Good luck, Best wishes

So I have not been diagnosed

So I have not been diagnosed with anything. However I have been having seizures for a few years now. And everytime I'm about to have one, my heart starts beating thru my chest,  my head gets cloudy and I start seeing wavy lines and TV snow. I know exactly when they are on coming because my heart will feel like it's going to thump right out of my chest. I went to three doctors who told me it was all in my head simply because seizure patients can't remember anything, and they can't feel them coming on....well I'm here to tell you that's a load of shark poop. Every episode I've had, I've been able to alert someone around me....I won't be looking for any treatments anytime soon. I figure natural selection can have this one...I hope everyone going thru this has someone to support them. It is very hard to deal with alone...

Did they ever figure out what

Did they ever figure out what is going on with your son? 

Re: Does anyone have rapid heartbeats before a seizure??

Hi there, it strange but i also get rapid heart beat before my seizures, the docs also dont think i have epilepsy...so i going private cos my docs havent done all the relevant tests to rule this out...grrr...you can get rapid heart beat if the neurones are firing deep in the brain, this also ties in with nausea and dizziness prior to a seizure-an aura. What is the taste in your mouth like? people do get that as an aura...it is usually described as a metallic taste but can take on other forms. My doc referred me to a shrink too and i have decided to get a second opinion, get one..and see te shrink, it doesnt mean u are making stuff up it means that ur brain may be firing chemical signals which cause seizures which are completely subconsious and u can make them happen, so dont worry if this ends up being the final diagnosis! do get a second opinion though and get ALL tests done eeg, veeg, aeeg, mri,ct...

hope this has been helpful

take care

emily
x x x

Re: Re: Does anyone have rapid heartbeats before a seizure??

Hi Emily and abrannon. Yes I get a very rapid Heart rate up to 120 bpm. I just got the Reveal Monitor implanted in my chest. My heart rate has also been known to drop too. So this little event recorder can catch those fluctutions. Or hopefully when the next seizure hits we will see what my heart rate did just before, during and after it.

Dayna

Re: Does anyone have rapid heartbeats before a seizure??

It is possible that the mood swings and rapid heartbeat may be caused by hormones. I know you are still young to be going through perimenopause but sometimes the hormones are screwed up a bit.

And the tingling is possible from an aura. Are these happening around your menstrual cycle? And do you have any thyroid problems?

take care
Lisa
http://health.groups.yahoo.com/group/EpilepsyApproach/

Re: Does anyone have rapid heartbeats before a seizure??

My daughter age 25 has seizures. She goes through these episodes where
her legs get very unstable and her whole body wabbles much like someone
with MS. She has been tested for it but all tests come up negative.
She also has at times rapid and hard heart beats. Sometimes they are
so hard I've seen her t-shirt quiver rapidly. I never associated it
with the seizure. She has had all kinds of tests for her heart and
although the tests show rapid heart beat they say the beats are regular in rythm. Thank you for your comments. I'm going to monitor
the rapid heart beat and see if it happens around the time of a
seizure. She also has an appointment at UC Davis in Sacramento to get
to the bottom of what type of seizures she does have. After reading your comments I'll mention to them about the rapid heart beats and
let you know what they say. Thank you so much for sharing. Sonia

Re: Does anyone have rapid heartbeats before a seizure??

My daughter age 25 has seizures. She goes through these episodes where
her legs get very unstable and her whole body wabbles much like someone
with MS. She has been tested for it but all tests come up negative.
She also has at times rapid and hard heart beats. Sometimes they are
so hard I've seen her t-shirt quiver rapidly. I never associated it
with the seizure. She has had all kinds of tests for her heart and
although the tests show rapid heart beat they say the beats are regular in rythm. Thank you for your comments. I'm going to monitor
the rapid heart beat and see if it happens around the time of a
seizure. She also has an appointment at UC Davis in Sacramento to get
to the bottom of what type of seizures she does have. After reading your comments I'll mention to them about the rapid heart beats and
let you know what they say. Thank you so much for sharing. Sonia

Re: Does anyone have rapid heartbeats before a seizure??

Has your daughter had a tilt table test? I've had similar symptoms, and my titlt table was abnormal. My blood pressure and heart rate are fine when lying dowin or sitting but when I stand my pulse and blood pressure shoot up rapidly above normal, then quickly return to normal when I lie down again. This causes a variety of symptoms inculding weakness and wobbly legs. I'm still waiting for confirmation from the doctors, but I think this is known as POTS syndrome. You should see if her symptoms worsen after she is lying down, then standing still for several minutes.

Here is a website with more info:

http://www.dinet.org/pots_an_overview.htm 

Re: Does anyone have rapid heartbeats before a seizure??

double post

Re: Re: Does anyone have rapid heartbeats before a seizure??

Hi
Sometimes my heart rate can increase during an aura/simple partial seizure but I think for me that is due to anxiety because I know that I may Go into a tonic clonic seizure. I know after my seizure I have a very high heart rate apparently it can be around 140.
If you are not happy then differently seek a 2nd opinion.
Take care
Honeybear

Re: Does anyone have rapid heartbeats before a seizure??

It can be caused by a number of things, low magnesium, potassium..
http://www.medicinenet.com/palpitations/page4.htm

get checked by your doctor
take care
Lisa
http://health.groups.yahoo.com/group/EpilepsyApproach/

rapid heart

Hi, Just last night in bed, I noticed 8 super fast heart beats. My wife said what's wrong I told her about the heart beats.   She said 2 minutes later I had a grand mall seizure. I am not sure If I had this happen before may other seizures , because I mostly have them when I am asleep. But like one of the other posters I too get the bad taste in my mouth.I have had every test there is . Of course I never have a seizure when I am hooked up to the monitoring device for that 3 day period.

Re: Re: Does anyone have rapid heartbeats before a seizure??

i too get the heart pumping really fast.but i notice it right after or during an episode. i know im going to have one because my left arm and left side of face go numb. my left arm get sooo cold too. told dr about the heart and i was really worried .so he did an ekg and then another test with iodine put in my veins to really see everything. results: nothing wrong with the heart! so wiped out all the time now too. i didnt now i was breathing heavy after an episode either, till others pointed it out. i suppose that would be from the heart working harder. be in charge and insist of test when u are worried. what can it hurt. as im finding out and i know everyone here, you have to be your own advocate!. good luck...

Re: Re: Re: Does anyone have rapid heartbeats before a seizure??

Hi everyone! I just got released from an epilepsy monitoring unit after 12 days. I only had 1 seizure but I am happy to say that I got some answers. These rapid heartbeats are seizures. For 7 years doctors said they were probably panic attacks and were in no way related to my seizures. I knew they were wrong so I went from doctor to doctor until I found this great epitologist(a Dr. who specializes in epilepsy) in Detroit. He assured me he would do whatever it takes to find me some answers. He scheduled me for the monitoring unit in order to watch my seizures while being "hooked up" to an EEG. The 3rd day there I had one of my typical episodes with the rapid heartbeats. After the doctors reviewed the EEG they came in and said "you were right, they are definitely seizures". I can not describe the feeling of FINALLY! they believe me! I am now going through the testing phases to see if I can have the surgery. In the mean time the Dr. added Keppra to see if that helps any. I have been taking Lamictal for a couple years now.
If you know something isn't right about what the Dr. says, please get a 2nd, 3rd, 4th.... opinion you are not alone.

Re: Does anyone have rapid heartbeats before a seizure??

Missy; I am really glad you had the testing. I have rapid heartbeats just before I have a myoclonic seizure, but I never put it together until I read your post. Because it happens only on going to bed, I thought it was caused by my sleep apnea, and it would go away after I put on my breathing equipment, layed down (which triggers the full-body myclonus for me), and then my heartbeat was normal. It never quite made sense before, because I wasn't asleep when the rapid heartbeat started. Thanks for posting your experience, because my own makes sense now.

Marie Reine

Re: Re: Re: Re: Does anyone have rapid heartbeats before a seizu

Life4me
This is information that I received this week, and I hope that you sign on. My doctors finally confirmed that I am Hypoglycemic--low blood sugar. Rapid heart rate is the first sign that I receive that my blood sugar is dropping. My heart beats so fast that I can actually put my hand on chest and feel my heart throbbing. Drinking a glass of juice or even soda allows glucose to your blood within 15 -20 minutes. That gives me enough time to eat something which will turn into glucose to the brain in 1 - 2 hours. Missing a meal can be a nightmare because the body needs time to process glucose and a seizure will still happen. Since eating on a strict schedule, the heart rate, sweating, disorientation, blurred vision have decreased. Remember when doctors tell you to eat 6 small meals per day? The in between meals snacks have become important. Check w/ your doctor about seeing an Endocrinologist who specializes w/ the blood sugar. I finally convinced my doctor just this week when I did my own blood glucose tests (My blood sugar keeps showing normal).
My rapid is heart beat is definitely in the morning (of course because I haven't eaten in over 9 hours) My own tests showed me that @ 6:30am - I was 123 (normal), 6:45am - 119 (normal), 7:00am -98
By almost 8:00am, my blood dropped into the 70s and a seizure. That is how quickly my blood sugar dropped. I rushed to my doctor who confirmed that my increased heart rate was a symtom of Reative Hypoglyemia--shows normal on a Glaucometer, but the body feels that it is FASTING and going into anxiety. Waiting for my referall for the Endocrinologist now. I found a lot of info on the computer.

Re: Re: Re: Re: Does anyone have rapid heartbeats before a seizu

Hi abrannon1227.

I read your post, and was glad to read the you had given an update on the testing. I appreciate it when updates are given in threads. I feel not only is that a nice welcoming gesture, and a positive one-they help those reading and following the threads, and posts. I also appreciated that you finally got answers to what had been happening to you. I also echo what you have to say. It's always wise and best to seek another opinion if, and when you are not satisfied with the treatment, or the diagnosis given. Doctors, neurologists, and other specialists in their particular fields while they might try their hardest for their patients, at the end of the day are human, and can get the diagnosis wrong. Patients want answers, especially were symptoms occur that even though presenting as not part of a seizure pattern, can be a challenge. It's so easy for things to get missed, ignored and not treated, or seizures be mistaken for another medical condition such as syncope for example.

What should be remembered is: Feelings and emotions are part of everyday life and most people with epilepsy experience emotions just like everyone else? Sometimes, like a number of other medical conditions, epilepsy can create challenges in many aspects of day-to-day living — either short lived or ongoing in nature. Some emotional or behavioural changes that can be associated with epilepsy include: stomach pains, diarrhoea, dry mouth, rapid heartbeat or palpitations, tightness or pain in chest, shortness of breath, dizziness, frequent urination, difficulty swallowing. Psychological symptoms can include: difficulty in sleeping, irritability, inability to concentrate, fear of madness, feeling unreal and not in control of your actions.

http://www.epilepsy.org.au/Moods_Behaviour_and_Epilepsy.asp

"Many false prophets are gone out into the world." 1 John 4:1

Re: Re: Re: Does anyone have rapid heartbeats before a seizure??

Hi there!

I am new at this and thought about your letter. My son is 8.5months old and also has rapid hart rates related to his seizures. Also tasting in his mouth and heavy rapid breathing. What kind of seizure do you have and when did it start and how do you control it now?

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