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Confused on what is wrong
Wed, 04/04/2018 - 19:30Hello,
I was hoping to get some kind of advice about a diagnosis my fiancee has received.
About 3 years ago my fiancee was diagnosed on the first visit with the Neurologist as having tonic clonic epileptic seizures and was put onto Topiramate. Skipping ahead to now, she had an EEG and placed under the strobe light lamp which caused an attack. We've just received the results which said there was no epileptic activity.
We have a bit of a wait to see the Doctor so we wanted some advice on what it could be? Understandably this has upset my fiancee as she has been told all along she is epileptic and now all of a sudden, she isn't! We are also very concerned about why do flashing lights have this effect on her if she isn't epileptic?
Also, she has seizures in her sleep too which I don't understand if this isn't actually epilepsy.
Any kind of advice/knowledge...anything! Is appreciated!
Thank you
So this is in advance of you
Submitted by Amy Jo on Thu, 2018-04-05 - 15:49
So this is in advance of you talking with the doc... but know that one can have psychogenic non epileptic seizures and have epilepsy as well - or something else could be going on. Because the goal is the correct diagnosis (or diagnoses), if there's any unresolved issue, you should consider a second opinion with an epileptologist. You also should ask if a sleep study would be helpful.