Be proactive

Most of us can't control our seizures, but don't let the seizures control you. I was diagnosed with epilepsy at the age of 9 and still have seizures at age of 53. Our epilepsies have different causes and are all different. I have idiopathic (means cause unknown) juvenile clonic myoclonic epilepsy and most probably genetic, which means it won't go away. Sometimes i only have a couple of seizures a year and sometimes I have a couple of seizures a day. Sometimes I have status epilepticus (non-stop seizures) for long periods. Sometimes i hurt myself and have memory loss problems. Go to a doctor, preferably a neurologist. Don't self diagnose. You are not a doctor and don't have the information. Let the doctors decide. Keep track of your seizure, frequency, time of the day or night, type and how long it lasts. Make a detailed list for your records and to take to doctor, preferably a neurologist. This is very very important as it gives the doctor all the information. Some don't listen, but they can read. Change doctors if they don't listen. Been on many medications, some work and some don't. Let the doctors pick the meds, but if they have side-effects, then let the doctor know and ask him to reduce your dose. Don't take yourself off, as it may cause seizures and withdrawal symptoms. Eat and sleep well. Limit or stop drinking alcohol and caffeine. Even though it is hard, be thankful in all the moments you are seizure free. Be mindful and take care of yourself.