Community Forum

Topic: Diagnostic Dilemmas and Testing

Created By: SummerShaddow | 10/2018 | 0 Comments

I really need some help. For the past 15+ years I've had temporal lobe seizures and didn't have health insurance to get tests etc. Now that I have insurance and am able to see a...

Created By: Rpela | 10/2018 | 0 Comments

Hello everyone!

I’m scheduled to have a VEEG in 2weeks and I’m freaking out. Can anyone share their experience and give any advice? Anything at all would help. I just don’t know what to...

Created By: DanielleR | 09/2018 | 0 Comments

I have been having these brain zaps that are like sudden electric jolts to my head. I dont fall out and convulse. I just instantly grab my head like I'm falling for a split second, then I...

Created By: Elljen | 09/2018 | 1 Comment

My son was diagnosed with juvenile absence epilepsy nearly 18 months ago at age 12. He was started on Zarontin 250mg once per day, then bumped up to twice per day. He stopped having absence...

Created By: keskew18 | 08/2018 | 9 Comments

My daughter just turned 6 years old and was diagnosed with Epilepsy in April. She has had 2 EEGs (one at DX, one after beginning medication) but is scheduled for an INPT video/audio monitoring for...

Created By: Knightowlxciii | 08/2018 | 2 Comments

Ive been having sparatic seizures for the past few years. I had a bad attack of like 20 back to back 3 months ago, my most recent siezure was a week ago. And a traumatic brain injury as an infant...

Created By: davidson101 | 07/2018 | 1 Comment

Ive been told i have epilepsy but i had a seizure in the hospital and non of my vital signs changed. My oxygen level stayed at 100% or may sometimes drop to around 98. They say i become...

Created By: Alixxchan | 06/2018 | 0 Comments

I am 22 years old, a month ago I was a perfectly healthy individual. But now I’m having symptoms such as seizures, passing out and a high resting heart rate of 100-110, I went through a sleep...

Created By: jobo_5b325701d515a | 06/2018 | 4 Comments

I have had two 20min scalp EEG and one plain MRI which were normal. We suspect there might be something epileptic going on.
I have never had traditional seizures. But fits of rage,...

Created By: Susan2867 | 06/2018 | 1 Comment

I have read that physiological non-epileptic seizures can be triggered by lack of oxygen to the brain, migraine, heart arrhythmia and brain wave slowing among other things. Apparently, if a person...

Created By: Katerade88 | 06/2018 | 1 Comment

Hello all!

Happy to be here and grateful to share my complicated experience thus far.
a baffling tonic clonic story!
Background: many years of depression that I’ve spent 10...

Created By: Lotte | 06/2018 | 1 Comment

Hi guys,

It's my first time on here but I could really use some advice, as I feel like I'm losing my mind. A few years ago I started having 'episodes' which were termed...

Created By: Sflagler | 06/2018 | 0 Comments

Just over two weeks ago my healthy 19 year old niece in-law with no history of siezures nor family history suffered one during her sleep. My nephew was awoken to strange sounds and when he looked...

Created By: Dagobert | 05/2018 | 2 Comments

So I have a 3 year old son that has autism, he is non verbal and for the past 8 months or so he does this thing with his eyes that looks somewhat similar to absense seizures. He shuts his eyes...

Created By: jeffreykuerst | 05/2018 | 1 Comment

Before I get into this, I already know what i'm about to explain is extraordinarily odd and weird, but it is what it is. About a year and a half ago, December 2016, I started getting these...

Created By: ctouchinski | 05/2018 | 2 Comments

There seems to be several factors that go into selecting the correct epilepsy medication. Does anyone know how important an EEG is in terms of helping the doctor select the proper medication?

Created By: Sarahd_5ae6c72d504b0 | 05/2018 | 2 Comments

I have been having some weird episodes where I get tired, need to lay down, feel weirdly anxious but not in a panic attack type way, can't keep my eyes open too long, want someone to stay...

Created By: Mfrazee1 | 04/2018 | 2 Comments

I'm really hoping someone can help me. I have been having weird symptoms for years now (tremors, memory loss, blind spots), and recently started having convulsive episodes-i am awake, aware,...

Created By: wolpertinger | 04/2018 | 1 Comment

My son has had about a half-dozen episodes now where he experiences an odd feeling "like something that happened before in a dream", which alerts him that the episode is starting. We are...

Created By: Mandipa | 04/2018 | 1 Comment

Hey everyone. I have a 30 year old brother who has had seizures since he was 7, coupled with development delays. He can't write much and his speech is really bad. He stutters through his...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline