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Community Forum

Topic: Diagnostic Dilemmas and Testing

Created By: Georgio | 06/2020 | 0 Comments

Hi all,

I have noticed that my wife (30 years old) makes lip-smacking sound often when she is asleep with rare jerks, sometimes she wakes up screaming and feeling very lost for 10 -15...

Created By: avatrin | 06/2020 | 2 Comments

Hi

I have been diagnosed with focal epilepsy. However, where that activity originates from seem to be moving around; My first EEG's showed that the epileptic activity was on the right...

Created By: gabbywhite96 | 05/2020 | 1 Comment

So this is probably going to be pretty long (sorry about that) but about a week ago I OD'ed on my medication (Topamax) and ever since then I've been experiencing these "seizures....

Created By: Khizz | 05/2020 | 2 Comments

Hello everyone,

I had my first ever tonic-clonic seizure last Thursday, before then I now realise I also appear to have been experiencing focal awareness seizures too (deja vu, rising...

Created By: Re-an | 05/2020 | 2 Comments

Hello can anyone help with this..my 20 year old daughter has seizures since she was 4yrs old
Every time she lets out a loud ‘woowoo’ scream and then straight after she will go flying forward...

Created By: ALL4Him | 05/2020 | 2 Comments

Hello, I am fairly new to dealing with seizures. My daughter now has a VP shunt and also has what were diagnosed as complex partial seizures a few years back by internal medicine doctor at the...

Created By: Anth2020 | 04/2020 | 3 Comments

Hi there
I’ve been experiencing seizures since I was 9. I’m now 20 however I have only just been diagnosed as having epilepsy. My first seizure happened about a week after my parents got...

Created By: asouzou | 04/2020 | 1 Comment

Hi guys. My name is Andriani , 32 years old, had a brain surgery 4 years ago for removal of a tumor.
I wanted to ask if someone experienced something similar to this:
Last night I had...

Created By: HannahKayleigh | 04/2020 | 2 Comments

Hi all, I’m new to the forum.

I had my very first seizure in 2017 or 2018, I remained fully conscious throughout the seizure, but experienced memory issues such as not remembering my name...

Created By: Rafi.saboory | 03/2020 | 2 Comments

Hello everyone!
My son is 10 years now, he has had his first tonic- clonic seizure when he was 4 years old it happened only once but age 5 the seizures escalated 3-4 seizures daily. He...

Created By: raydot93 | 03/2020 | 5 Comments

8 months ago I woke up after attending wedding and had what I can only describe as a conscious seizure: I remained awake but the muscles in my stomach started spasming, I started grunting and...

Created By: LinaeveStar | 03/2020 | 2 Comments

Anyone else have their eyes very rapidly 'vibrate' side to side during one of the strobe lights? It was as if my eyes were trying to follow two separately flashing lights, except it was...

Created By: Tammy0627 | 03/2020 | 0 Comments

I had an EEG done and it showed a 8-9 Hertz posteriorly dominant rhythm was noted. The rhythm attenuates with eyes open and closed. Occasional left tempoparietal sharp wave activity noted with...

Created By: EmilyB_5df11112e72ac | 02/2020 | 1 Comment

Can anybody who has had a neurology appointment in the uk through the NHS tell me what happens in your first neurology appointment? Will any tests or examinations take place? Do they have to book...

Created By: EmilyB_5df11112e72ac | 02/2020 | 2 Comments

Hi there,

4 months ago I developed what I think is TLE.
My symptoms at the beginning were a extreme deja vu of a dream I’ve never had, extreme fear and anxiety, intense nausea and...

Created By: Scooter1 | 02/2020 | 2 Comments

hi. in 2007 after almost 10 years of seeking help and being medicated with a heart medication I was diagnosed with left temporal lobe epilepsy. I saw and was treated and medicated by the same...

Created By: sunshinedaydream77 | 01/2020 | 2 Comments

I had what I thought was a panic attack, and when I told my neurologist's nurse, she said to go to a psychiatrist. The psychiatrist said he thinks it was a seizure, but he was not really...

Created By: Shellyb | 01/2020 | 1 Comment

My 10 year old daughter has been having episodes of dream like states when she is awake. She had a sleep deprived eeg before Xmas and they've now called her in for a 24 hour one. They told me...

Created By: Jacquifulton | 01/2020 | 2 Comments

I'm 35 and have had absence seizures since I was a child. I was lucky that one was caught on my first EEG. It is managed with Lamictal and I haven't had one since 2017.

But this...

Created By: Suzane2020 | 01/2020 | 6 Comments

I have been having strange symptoms for almost 3 years.

It started off as complex scenic hallucinations that occur in the dark room - mostly at night. Then after I fall asleep I would be...

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