Community Forum

Topic: Diagnostic Dilemmas and Testing

Created By: Luckilayd | 03/2019 | 0 Comments

Hello, Wondering if anyone can tell me what a left-sided neuronal dysfunction is, or left posterior dysfunction? I recently had both a EEG and a sleep deprived EEG and that is what the results...

Created By: 16nhandley | 02/2019 | 2 Comments

Hi guys. 20F here. If you could take some time to read my post and share your stories about diagnostic troubles and/or give a little thoughts on what's going on, I would appreciate it more...

Created By: vvskourlife | 02/2019 | 2 Comments

Hello,

My 3.5 year old is a healthy child with no major issues other than seasonal viral fevers and ear infections. One day he woke up to vomit and my husband took him to the bathroom. He...

Created By: Yogagirl38 | 02/2019 | 0 Comments

Hello all! I’ve been having some odd issues so i went to a neurologist. Just had the EEG but have to wait a few weeks for results. I am wondering what you all experienced, and what the diagnosis...

Created By: kylierach | 02/2019 | 1 Comment

Hi guys, I’m new to this. I been having some pretty funny episodes here lately which I’m convinced are simple partial seizures.. I’ve had a ct scan at the emergency room and it has come back clean...

Created By: princesspapercut | 02/2019 | 1 Comment

Hello,
I have been having temporal lobe epilepsy symptoms in the past few months. I had an EEG earlier this week which was prescribed by my primary care doctor. I've yet to see a...

Created By: 16nhandley | 02/2019 | 4 Comments

Hi all,

I am seeking just someone to listen and also to share their experiences in being diagnosed, especially any troubles they had in the process.

I'm new here and don't...

Created By: tikvah4 | 01/2019 | 1 Comment

If anyone has had similar symptoms with their toddlers, I'd love to hear about it. Our daughter started having strange episodes almost a year ago that are very rare, but suspicious when they...

Created By: JaneShepard | 01/2019 | 0 Comments

Hello, I am writing this here because i am not sure where else to ask this and this forum seems like the correct place.

I am a hypoglycemic prone individual and last night i went to bed...

Created By: jab3562 | 01/2019 | 1 Comment

Hi there, I’m trying to figure out what’s going on with me? I’ve had a lot of ringing in the ears, and I thought it was related to blood pressure. But my blood pressure is fine. The other day I...

Created By: cubeche | 01/2019 | 0 Comments

I am 55 years old. 10 years ago I had two provoked seizures. One from alcohol withdrawal and the other from rapid withdrawal of a anti-seizure medication (Keppra). My Neurologist/Epileptologist...

Created By: KADYKAINZ | 01/2019 | 0 Comments

I have had a weird few days where I have been having de ja vu feelings, my tummy tightens I know things before they happen, what someone is going to say things on tv etc and I get a funny taste in...

Created By: monjanse | 12/2018 | 1 Comment

i have highfunctional autism and have now been in a period of misspelling words by speøling often forexample words like "applepie" as "aplepile" and had to correct them...

Created By: cosmiczaz | 12/2018 | 1 Comment

Im 18 years old and just finished my first semester in college. My dad has epilepsy, so does his brother, and i think either his dad or mom had it too. Around the end of my first semester of 12th...

Created By: shay_ | 12/2018 | 0 Comments

Hi. I’m 18 years old and female. On Wednesday night, I strated having uncontrollable jerking of my arms. It only happened a few times and I didn’t think much of it. On Thursday, I felt off the...

Created By: carriemceachin | 11/2018 | 2 Comments

Hey everyone. I could really use some advice on what to do for my two-year-old son. It’s a long story, so here we go: a couple months ago my son got an ear infection and was put on antibiotics,...

Created By: Melissahawley | 11/2018 | 2 Comments

My now 3.5 year old was diagnosed with epilepsy in June, 2017 @ Tufts Floating.
She was diagnosed after three "episodes" I was certain were seizures in her sleep and a) an abnormal...

Created By: eoviaho | 10/2018 | 2 Comments

Hello, I recently had my 3rd full blown seizure and was hospitalized for a few days. The Dr prescribed me with Zonisamide or Zonegran and everything was fine for about 5 days until recently I had...

Created By: SummerShaddow | 10/2018 | 8 Comments

I really need some help. For the past 15+ years I've had temporal lobe seizures and didn't have health insurance to get tests etc. Now that I have insurance and am able to see a...

Created By: Rpela | 10/2018 | 1 Comment

Hello everyone!

I’m scheduled to have a VEEG in 2weeks and I’m freaking out. Can anyone share their experience and give any advice? Anything at all would help. I just don’t know what to...

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