JAN! LOOKEE HERE!

CDC funded page

Not a CDC funded Page

JAN,

FOR SOME REASON I WASN'T ABLE TO POST ON YOUR BLOG. YOU DO KNOW HOW TO GET MY ATTENTION, LOL!!!

WHAT YOU ARE EXPERIENCING ARE SIMPLE SEIZURES:

http://my.epilepsy.com/epilepsy/seizure_simplepartial

YOU KNOW, THE ONES THAT ARE NOT SIMPLE AT ALL? AGGRAVATING LITTLE BUGGERS....THEY NEED TO CHANGE THE NAME TO 'SIMPLY AGGRAVATING SEIZURES'. YOU TAKE CARE GIRL!

-Spiz

~We all matter, even when we haven't the slightest clue why~

*I TYPE IN CAPS FOR THE VISUALLY IMPAIRED*

Comments

Re: JAN! LOOKEE HERE!

Submitted by ROCKNROLL on Sat, 2008-06-28 - 22:11

WELL, I THOUGHT THIS WAS GOING TO BE A MATE FOR THE FURRY GREEN GUY! AND I THOUGHT YOU DIDN'T GET POSTICTAL WITH SIMPLE SEIZURES, SPIZ.........OH, SO MUCH TO KNOW, SO HARD TO UNDERSTAND! I READ THOSE THINGS ABOUT THE SEIZURES BUT THEY DON'T MAKE SENSE TO ME! IT'S A BRAIN THING! ALL I CAN FIGURE OUT IS THAT IT WENT INTO A COMPLEX PARTIAL FROM THE AMOUNT OF TIME I WAS POSTICTAL........A COUPLE OF HOURS I THINK.

THANK YOU DEARIE! DANG, I THOUGHT I WASN'T HAVING ANY SEIZURES AT ALL! HOW DELUSIONAL IS THAT? LOL! GOT YOU'RE ATTENTION THOUGH! LOVE YA LADY,

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

WELL, I THOUGHT THIS WAS GOING TO BE A MATE FOR THE FURRY GREEN GUY! AND I THOUGHT YOU DIDN'T GET POSTICTAL WITH SIMPLE SEIZURES, SPIZ.........OH, SO MUCH TO KNOW, SO HARD TO UNDERSTAND! I READ THOSE THINGS ABOUT THE SEIZURES BUT THEY DON'T MAKE SENSE TO ME! IT'S A BRAIN THING! ALL I CAN FIGURE OUT IS THAT IT WENT INTO A COMPLEX PARTIAL FROM THE AMOUNT OF TIME I WAS POSTICTAL........A COUPLE OF HOURS I THINK.

THANK YOU DEARIE! DANG, I THOUGHT I WASN'T HAVING ANY SEIZURES AT ALL! HOW DELUSIONAL IS THAT? LOL! GOT YOU'RE ATTENTION THOUGH! LOVE YA LADY,

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

Re: JAN! LOOKEE HERE!

Submitted by spiz on Tue, 2008-07-01 - 15:50

JAN,

" I CAN'T SEE ANYTHING, NADA, ZIP, ZILCH. EVERYTHING IS BLACK."....I'VE NEVER EXPERIENCED ANYTHING LIKE THAT. I HAVE READ THAT THIS CAN OCCUR DURING A POST ICTAL PHASE BUT THAT DOESN'T MEAN THIS IS WHAT IS HAPPENING WITH YOU. YOU NEED TO LET YOUR DOCTOR DETERMINE THAT. I DON'T EVER REMEMBER WHAT HAS OCCURED DURING A COMPLEX PARTIAL AND HAVE ALWAYS COME OUT OF ONE CONFUSED, NOT REMEMBERING HOW I GOT WHERE I AM WHEN COMING OUT OF ONE, I'M SOMETIMES IN THE HOUSE AND SOMETIMES OUTDOORS...ONE TIME I WAS HUGGING A TREE FOR DEAR LIFE - LOL! ANYTHING WEIRD THAT HAPPENS AFTER THE SEIZURE, I ALWAYS BLAME ON BEING POSTICTAL OR THE WORLD AROUND ME...WHICHEVER MY BIPOLAR BUTT DECIDES IS THE THE MOST PROBABLE. ;)

MY ADVICE IS FOR YOU TO PLEASE INFORM YOUR DOCS OF THIS. YOU HAVE SO MUCH MORE THAN SEIZURES GOING ON - (HUGS) - AND YOUR DOCS NEED TO BE ON THEIR TOES AT ALL TIMES. YOU KEEP A JOURNAL, RIGHT? WE BOTH KNOW HOW OUR MEMORIES ARE...

I LOVE THE NEW PIC! :)

I'M SORRY I DIDN'T ANSWER BEFORE NOW BUT I DIDN'T SEE THIS POST UNTIL I LOOKED AT YOUR ACTUAL BLOG PAGE. I CAME ON TO GIVE YOU A LINK EXPLAINING THE DIFERENT ICTAL PHASES SO YOU WOULD BE ABLE TO MAYBE IDENTIFY HOW/WHAT YOU REMEMBER FEELING AND MAYBE FIND AN ANSWER. HERE IS THE LINK...

http://my.epilepsy.com/node/47

THIS LINK LISTS SYMPTOMS AND STAGES OF PRE ICTAL, ICTAL AND POST ICTAL. THERE USED TO BE A MORE DETAILED ICTAL STAGES LINK ON ECOM...IF I FIND IT, I'LL POST IT HERE TOO. TAKE CARE!

-Spiz

DISCLAIMER: I AM NOT A DR.....SHE IS ONLY KIDDING!

~We all matter, even when we haven't the slightest clue why~

*I TYPE IN CAPS FOR THE VISUALLY IMPAIRED*

JAN,

" I CAN'T SEE ANYTHING, NADA, ZIP, ZILCH. EVERYTHING IS BLACK."....I'VE NEVER EXPERIENCED ANYTHING LIKE THAT. I HAVE READ THAT THIS CAN OCCUR DURING A POST ICTAL PHASE BUT THAT DOESN'T MEAN THIS IS WHAT IS HAPPENING WITH YOU. YOU NEED TO LET YOUR DOCTOR DETERMINE THAT. I DON'T EVER REMEMBER WHAT HAS OCCURED DURING A COMPLEX PARTIAL AND HAVE ALWAYS COME OUT OF ONE CONFUSED, NOT REMEMBERING HOW I GOT WHERE I AM WHEN COMING OUT OF ONE, I'M SOMETIMES IN THE HOUSE AND SOMETIMES OUTDOORS...ONE TIME I WAS HUGGING A TREE FOR DEAR LIFE - LOL! ANYTHING WEIRD THAT HAPPENS AFTER THE SEIZURE, I ALWAYS BLAME ON BEING POSTICTAL OR THE WORLD AROUND ME...WHICHEVER MY BIPOLAR BUTT DECIDES IS THE THE MOST PROBABLE. ;)

MY ADVICE IS FOR YOU TO PLEASE INFORM YOUR DOCS OF THIS. YOU HAVE SO MUCH MORE THAN SEIZURES GOING ON - (HUGS) - AND YOUR DOCS NEED TO BE ON THEIR TOES AT ALL TIMES. YOU KEEP A JOURNAL, RIGHT? WE BOTH KNOW HOW OUR MEMORIES ARE...

I LOVE THE NEW PIC! :)

I'M SORRY I DIDN'T ANSWER BEFORE NOW BUT I DIDN'T SEE THIS POST UNTIL I LOOKED AT YOUR ACTUAL BLOG PAGE. I CAME ON TO GIVE YOU A LINK EXPLAINING THE DIFERENT ICTAL PHASES SO YOU WOULD BE ABLE TO MAYBE IDENTIFY HOW/WHAT YOU REMEMBER FEELING AND MAYBE FIND AN ANSWER. HERE IS THE LINK...

http://my.epilepsy.com/node/47

THIS LINK LISTS SYMPTOMS AND STAGES OF PRE ICTAL, ICTAL AND POST ICTAL. THERE USED TO BE A MORE DETAILED ICTAL STAGES LINK ON ECOM...IF I FIND IT, I'LL POST IT HERE TOO. TAKE CARE!

-Spiz

DISCLAIMER: I AM NOT A DR.....SHE IS ONLY KIDDING!

~We all matter, even when we haven't the slightest clue why~

*I TYPE IN CAPS FOR THE VISUALLY IMPAIRED*

Re: JAN! LOOKEE HERE!

Submitted by ROCKNROLL on Tue, 2008-07-01 - 22:49

1. SPIZ, SORRY I WAS CALLING YOU BACK WHEN YOU WERE TAKING A BRAIN TIME OUT! I UNDERSTAND THAT ONE COMPLETELY. DO IT MYSELF.

2. I JUST WROTE A BLOG SO EVERYONE WOULD KNOW YOU AREN'T A DOC. IT NEVER OCCURRED TO ME THAT SOMEONE WOULD, BUT YOU ARE RIGHT, SOMEONE COULD THINK YOU ARE. SO, THAT I HOPE WONT HAUNT YOU!

3. I AM NUMBERING THESE CAUSE I WANT TO MAKE SURE I REMEMBER WHAT I AM SAYING! IT IS A BRAIN THING! YES, I KNOW HOW MY BRAIN IS.

4. I AM SORRY, I DIDN'T KNOW YOU WERE ALSO BIPOLAR. MAN, YOU AND CRASH MUST REALLY HAVE A HARD TIME. TREE HUGGIN' OR NOT, I LOVE YOUR SILLINESS! IT GIVES ME GREAT JOY! CHEERS ME UP ON ALMOST A DAILY BASIS!

5. MY PROBLEM, IS THAT EVERY OTHER DOCTOR BUT MY NEUROLOGIST, TELLS ME ALL THESE THINGS AND MORE THAT HAPPEN TO ME ARE SEIZURES. SO I JUST CAN'T FIGURE IT OUT. I CAN'T FIGURE OUT WHY I WENT TO HIM SINCE 1992 TO PRESENT AND I WAS NEVER GIVEN MEDS UNTIL LAST YEAR. I DON'T HAVE ANY MEMORY OF SEEING HIM ALL THOSE YEARS, BUT NOW I KNOW A LOT OF WEIRD THINGS THAT WERE GOING ON WITH ME WERE SEIZURES AND NOT ALL BRAIN DAMAGE. EEEEEEEEEEEEKKKKKKKKKKKKKK!

6. MANY WRITE THAT SEEING AN EPILEPTOLOGIST IS BETTER THAN SEEING A NEUROLOGIST, BUT I HAVE NONE ON MY INSURANCE PLAN.

7. I HAVE A RIGHT FOR A SECOND OPINION, BUT I DON'T KNOW THE NAMES OF THE DOCTORS WHO TOLD ME THAT THEY WERE SEIZURES OR THEY ARE NOT ACCESSIBLE TO ME.......ANOTHER EEEEEEEEKKKKKKKK!

8. SEEMS TO ME THEY OUGHT TO BE CHECKING FOR A BLOCKAGE IN THOSE ARTERIES. I DID HAVE SEVERAL BRAIN ANEURYSMS.........SEEMS LOGICAL WHEN I LOOSE MY VISION, HUH.......AND AM BLIND IN ONE EYE, LOW VISION IN THE OTHER, AND ALL KINDS OF NEUROLOGICAL PROBLEMS THAT AFFECT MY VISION.

9. OH YEAH, DID YOU SEE THE PICTURE I LEFT FOR YOU????? BY MY GUESTBOOK......IT SAYS FOR SPIZ........YOU NEED TO ENLARGE IT TO REALLY SEE IT.........YOU WILL UNDERSTAND.

10. THANKS FOR THE LINK TO ICTAL PHASES. I HOPE MY BRAIN CAN PROCESS IT, CAUSE IT USUALLY DOESN'T AND I DON'T SEEM TO BE ABLE TO RELATE TO WHAT THEY ARE SAYING. WITH ALL THE WEIRD THINGS THAT HAPPEN TO ME, WHO REALLY KNOWS!

11. I FORGOT.

12. OMG, THE SKY IS TOTALLY BLACK. A HARD RAIN'S GONNA FALL! LATER. LET ME KNOW WHEN YOU ARE FEELING BETTER!

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

I USE ALL CAPS FOR THE VISUALLY IMPAIRED. .

1. SPIZ, SORRY I  WAS CALLING YOU BACK WHEN YOU WERE TAKING A BRAIN TIME OUT! I UNDERSTAND THAT ONE COMPLETELY. DO IT MYSELF. 2. I JUST WROTE A BLOG SO EVERYONE WOULD KNOW YOU AREN'T A DOC. IT NEVER OCCURRED TO ME THAT SOMEONE WOULD, BUT YOU ARE RIGHT, SOMEONE COULD THINK YOU ARE. SO, THAT I HOPE WONT HAUNT YOU! 3. I AM NUMBERING THESE CAUSE I WANT TO MAKE SURE I REMEMBER WHAT I AM SAYING! IT IS A BRAIN THING! YES, I KNOW HOW MY BRAIN IS. 4.  I AM SORRY, I DIDN'T KNOW YOU WERE ALSO BIPOLAR. MAN, YOU AND CRASH MUST REALLY HAVE A HARD TIME. TREE HUGGIN' OR NOT, I LOVE YOUR SILLINESS! IT GIVES ME GREAT JOY! CHEERS ME UP ON ALMOST A DAILY BASIS! 5. MY PROBLEM, IS THAT EVERY OTHER DOCTOR BUT MY NEUROLOGIST, TELLS ME ALL THESE THINGS AND MORE THAT HAPPEN TO ME ARE SEIZURES. SO I JUST CAN'T FIGURE IT OUT. I CAN'T FIGURE OUT WHY I WENT TO HIM SINCE 1992 TO PRESENT AND I WAS NEVER GIVEN MEDS UNTIL LAST YEAR. I DON'T HAVE ANY MEMORY OF SEEING HIM ALL THOSE YEARS, BUT NOW I KNOW A LOT OF WEIRD THINGS THAT WERE GOING ON WITH ME WERE SEIZURES AND NOT ALL BRAIN DAMAGE. EEEEEEEEEEEEKKKKKKKKKKKKKK! 6. MANY WRITE THAT SEEING AN EPILEPTOLOGIST IS BETTER THAN SEEING A NEUROLOGIST, BUT I HAVE NONE ON MY INSURANCE PLAN. 7. I HAVE A RIGHT FOR A SECOND OPINION, BUT I DON'T KNOW THE NAMES OF THE DOCTORS WHO TOLD ME THAT THEY WERE SEIZURES OR THEY ARE NOT ACCESSIBLE TO ME.......ANOTHER EEEEEEEEKKKKKKKK!  8. SEEMS TO ME THEY OUGHT TO BE CHECKING FOR A BLOCKAGE IN THOSE ARTERIES. I DID HAVE SEVERAL BRAIN ANEURYSMS.........SEEMS LOGICAL WHEN I LOOSE MY VISION, HUH.......AND AM BLIND IN ONE EYE, LOW VISION IN THE OTHER, AND ALL KINDS OF NEUROLOGICAL PROBLEMS THAT AFFECT MY VISION. 9. OH YEAH,  DID YOU SEE THE PICTURE I LEFT FOR YOU????? BY MY GUESTBOOK......IT SAYS FOR SPIZ........YOU NEED TO ENLARGE IT TO REALLY SEE IT.........YOU WILL UNDERSTAND.    10. THANKS FOR THE LINK TO ICTAL PHASES. I HOPE MY BRAIN CAN PROCESS IT, CAUSE IT USUALLY  DOESN'T AND I DON'T SEEM TO BE ABLE TO RELATE TO WHAT THEY ARE SAYING. WITH ALL THE WEIRD THINGS THAT HAPPEN TO ME, WHO REALLY KNOWS! 11. I FORGOT. 12. OMG, THE SKY IS TOTALLY BLACK. A HARD RAIN'S GONNA FALL! LATER. LET ME KNOW WHEN YOU ARE FEELING BETTER!     I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN  I USE ALL CAPS FOR THE VISUALLY IMPAIRED. .