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Community Forum

Topic: Complementary Therapies

Created By: heidimama | 07/2014 | 2 Comments

Hi. We are at the point where we need to consider ketogenic diets. We have several failed meds, brain surgery, and are considering a new med with a pretty serious side effect(losing peripheal...

Created By: fergnetter | 05/2014 | 5 Comments

My son is severly autistic, non-verbal, age 19, and has had seizures since age 10.  Meds have not helped much.  Two months ago he had the vns surgery and seemed fine until 2 weeks ago.  Could the...

Created By: csinghofen | 05/2014 | 2 Comments


I am just courius if anyone has taken 2 AEDs at the same time? I am currently taking KeppraER (for my grand mal) and soon i will be taking DepakoteER to help with the small seizures. I...

Created By: | 04/2014 | 0 Comments
Created By: | 04/2014 | 0 Comments

Hello! I am a high school senior, and I have been conducting research on the benefits of art therapy for people with epilepsy throughout this school year. I am currently looking for people with...

Created By: UH_Warrior13 | 10/2013 | 2 Comments


I am not new to epilepsy just this baird.

I walked off about 4 years ago for personal reasons.

I got my VNS because I was rea;;y s;iding down hill and almost died...

Created By: amylurn | 09/2013 | 3 Comments

My daughter (7 year old with no prior medical or learning...

Created By: luv_night_life | 07/2013 | 9 Comments

I am thinking now of getting the vns and have some questions.  I've already had a right temporal lobectomy about five years ago and it didn't work and I feel getting the vns might help.  I really...

Created By: xgi | 04/2013 | 0 Comments
kids with uncontrolled seizures now have hope Let's end the drug war and stop the suffering
Created By: Marvingirl | 03/2013 | 3 Comments
Asside from TLE I also have Sjogren's Syndrome which is a autoimmune disease of the glands. It bassically means that I am chronic dry. I always take fish oil without problems, but the last two...
Created By: yankees1923 | 01/2013 | 0 Comments
Based upon the recent article posted on showing selenium and zinc deficiencies in a group of patients with drud resistant ideopathic epilepsy, it would seem reasonable to consider...
Created By: baleebo | 11/2012 | 0 Comments
Has anyone heard of KetoCuisine that helps out with the Ketogenic Diet?
Created By: Rhoni | 11/2012 | 9 Comments
My son Alex began small twitches in his left hand & giggled for a few seconds. After a week it grew into 10-15 second seizures- his left hand up in the air with extreme tension/muscles &...
Created By: xgi | 10/2012 | 12 Comments
GW Pharma’s cannabis based epileptic drug on its way by Jack123 October 22, 2012 22 october 2012 ; GW Pharmaceuticals, a drug manufacturing Biotech Company has been found to provide a...
Created By: llora428j | 08/2012 | 1 Comment

Has anyone ever heard of Stem Cell Treatment for Epilepsy? It is preformed by Stem Cell of America.


Created By: tonerboy | 06/2012 | 2 Comments
My 21 year old son had simple and partial complext seizures from age 3 to 13, took meds (the 4th one, Lamictol, worked) until age 15 when he weaned off after 2 years seizure free. After surgery at...
Created By: dabbler | 05/2012 | 1 Comment
My 9 year old son had Rolandic epilepsy.  We noticed that he had them more frequent when we ate Chinese food, known for using MSG (monosodium glutimate).  We stopped eating there and carefully read...
Created By: jego | 03/2012 | 2 Comments

I'm 26 years old - male.

I've been suffering from AbsenceSeizure since I was a child. It comes suddenly then followed by a headache. It has a trigger though: Lack or Over...

Created By: admin1 | 01/2012 | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: billcote | 11/2011 | 0 Comments

Has anyone had any success in helping to control seizures by adding a manganese supplement to your diet? I found some interesting information online that led me to try taking manganese.


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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.