Community Forum

Topic: Complementary Therapies

Created By: Acjohnson | 07/2019 | 0 Comments

My name is Ariel. I am 29 years old. I have had epilepsy since I was about 2. I had a 3 and a half hour grand mal when I was 2 and it caused permanent damage on my left temporal lobe. I then got...

Created By: thewolf | 07/2019 | 1 Comment

I tried to share my story but it does not show up. This is not a very good Forum tool either poor design or on purpose

Created By: thewolf | 07/2019 | 2 Comments

The Short story: I had 3 grand mal seizures when I was 32, the meds just did not work for me, took magnesium, trace minerals, regular minerals, all natural supplements, also took other supplements...

Created By: fatgad@mail.com | 06/2019 | 0 Comments

Fair Warning, I am a guy, I HAVE NEVER had any seizures before.
I'm posting because a woman I'm interested in dating does.
Prior to knowing her I didn't know anything...

Created By: Murpmr | 05/2019 | 3 Comments

I take a combination of Keppra, lamictal and Zaronyin and I am still not seizure free. I have absence seizures. I’m curious about CBD oil. Does anyone know if it would conflict with the...

Created By: SaraKate | 04/2019 | 4 Comments

Has anyone tried IV vitamin therapy to help manage their seizures? If so, what was your experience with it? What was the result? I know that there is a lot of doubt as to whether IV vitamin...

Created By: gcooper1 | 01/2018 | 1 Comment

Hi, I’m heading to Amsterdam soon with my friends and I wanted to know if anyone had any advice about me trying weed or space cakes while I’m there. I was diagnosed with juvenile myoclonic...

Created By: LaGallina | 12/2017 | 4 Comments

I've been off this site since October, when I was complaining about the intolerable side effects of seizure meds. After talking to my neurologist about alternatives like diet and he told me...

Created By: KTM | 11/2017 | 8 Comments

I live in Missouri where CBD oil has become legal in the last couple of years if a neurologist gives you an "oil card." My seizures are caused by a brain tumor and my neuro-oncologist...

Created By: Kissmyass17! | 11/2017 | 1 Comment

Hello, was just wondering if anyone else has had or is having the same issue. My 23 yr old daughter has had seizures since she was 4 up until she was around 10. She had the VNS implanted at age 7...

Created By: LaGallina | 10/2017 | 6 Comments

I’m recently diagnosed with simple partial seizures. Started having them about six months ago and then this last month I’ve had seizures Everyday, Sometimes twice a day and they are getting worse...

Created By: brundibar | 10/2017 | 1 Comment

Hi all,
did you ever try getting rid of MSG in your food ? It's probably only for post-traumatical epilepsy (my case), but if you still cannot find a working medicine (or if your...

Created By: Arlene Norfolk | 09/2017 | 2 Comments

Hi all. I'm hoping that I can help someone. I have had genetic generalised epilepsy for 35 years. About 22 years ago though, whilst going to uni, it reached its peak. Some days three grande...

Created By: Bugshoes2 | 08/2017 | 0 Comments

I have a question
Has anyone's doctor turned their VNS to high to where there has been problems? If so what was it. Cause mine turned mine up to high and I started to chick when I...

Created By: Broooke denver | 04/2017 | 4 Comments

I'm on my 3rd failed med, with 3 failed "complimentary med" to boot. So I'm looking around. Last year I tried the Keto diet but I just don't have the discipline for it...

Created By: casinotom60 | 03/2017 | 1 Comment

I am 60 I had my lat 1 n 2002 I had total of 3 b 4 I got the rot dose.I hac Ben taking the med depakote.I Ben talk every day for 15years I hav takn only 40 250 mg n 30 days I feel much beter. I...

Created By: khushi | 01/2017 | 1 Comment

Is Cupping is work in epylapsy?

Created By: grunak | 12/2016 | 5 Comments

Anyone, that has experience with using medical marijuana for seizures.
I have heard that marijuana can help seizures but also have heard it can make seizures worse.
Unfortunately, I...

Created By: vadadorman | 05/2016 | 1 Comment

I have refractory primary generalized epilepsy. I had a VNS put in in february. Ever since then, I've lost all feeling in the left side of my throat, my left eye swells on and off, I have a...

Created By: simone.sol | 05/2016 | 2 Comments

Neurofeedback!
Any body hear of it or use it as to treat and help control their seizures?
If so what are your thought about it and experiences?

Thanks

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