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Sleep seizures and CBD oil

Ive had seizures in my sleep since i was in 3rd or 4rd grade. I am now 37yrs old, been on Tegretol XR since then. The medication controls my seizures well, but if im exhuasted with little sleep I will have a seizure. My seizures consist of my muscles tensing up for 20-30secs and then i just keep sleeping. I do not want to keep taking meds for rest of my life and have heard great things about the use of cbd oil controlling seizures. Ive purchsed Charlotte's Web 17mg cbd oil. Has anyone tried this brand or any other with great results? what is your regimen?

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Hi LadyNoc, Thanks so much

Hi LadyNoc, Thanks so much for sharing posting and we understand your concerns. It's important that you discuss any changes in seizure types, frequency, behaviors, side effects and symptoms with your healthcare team. Treatment varies for each individual. It’s always a good idea to speak with your doctor prior to making any changes to your treatment, to determine what’s best for you. Taking seizure medications regularly, and as recommended by your doctor is vitally important. Noncompliance with seizure medications can have significant consequences. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-an... can learn more about CBD oil here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-trea... Sleep is essential for physical and mental health, as well as, quality of life and safety.  For more information regarding seizure safety at night please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe... Additionally, you may want to consider with your doctor having a device that can help track seizures, by reviewing our seizure alert device factsheet: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Ale... by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your providers. You may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline   

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