Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Is exacerbation of seizures from medical marijuana, a possibility?

Wed, 12/14/2016 - 14:21
Anyone, that has experience with using medical marijuana for seizures. I have heard that marijuana can help seizures but also have heard it can make seizures worse. Unfortunately, I tried (legally) medical marijuana! I found that it made my seizures much worse. Has anyone had similar experiences, or have any information they can share? I am puzzled as to why this happens to some and not others. And it's not just a fluke thing. This has happened the two times I have done it. Believe me I will not be doing that again.

Comments

I have used cannabis since

Submitted by Roald on Thu, 2017-04-20 - 13:43
I have used cannabis since high school long before I started having seizures after a MVA in 2013. Like the "homegrower" said, there is a big difference between pure indica, pure sativa, and now the plethora of hybrid indica/sativa strains. There are so many different strain available it is in the thousands. Its one of those things that will affect each person differently and takes some testing out to find the right strain for you, just like I've had Drs test out 5+ anti-epileptic drugs on me to see what works. Some didn't do anything, some made me worse and did nothing to improve my seizures and some made my seizures worse (Rx's) and I imagine cannabis to be similar in some ways. I would consider myself very experienced, growing it myself, and doing some volunteer work a few times for a couple different medical cannabis producers here in NM. (Which made me have seizures the following night and day) They know each strain can have a different effect on different people with different medical conditions and that is why they all offer a 100% satisfaction guaranteed so if it doesn't work or agree with you in some way you can return it for a full refund or exchange for a different strain. Most people when they try cannabis, smoke a joint bigger than needed at first of a strain they are not familiar with. This would be like you neurologist starting you on a new RX and starting off at the maximum dose instead of starting out at a low dose and working your way up over time as you get used to it. I personally quit smoking and only vaporize, eat edibles, or take cannabis oil. Smoking is very fast and effective but the other methods I mentioned are healthier. Maybe you have already decided it is not for you but if you decide to try it again here are some things I recommend. Get 2 or 3 different kinds and try and talk to the people you get it from about it's effects: does it wake you up, put you to sleep, help with pain, help with depression, why do people like/use that particular strain? Then use that info to select what you want/need help with. Then when you decide to try it, try a tiny amount. If you decide to smoke, take only one small hit and that is all. If it is a brownie or edible of some kind do not eat the  whole thing and just take one bite or maybe 25% of the brownie or cookie or whatever. You can always eat or smoke more but you can't eat or smoke less. If you don't feel anything that is fine, if you do in a good way fine, if you feel it in a bad way it will just be a little and not overwhelming. Then before trying more I'd wait an hour or two at the very least or a day. Then try the same amount or slightly more the next time and continue with that process untill you find the right strain and right amount. Some strains are nicknamed "1-hitter-quiter" because all it takes is one hit even for experienced smokers. It can take some trial and error and some time but that way your tolerance also increases so you can increase the level of cannabinoids in you system without feeling like you are ever getting too high or stoned. I still find strains that are better or worse for me and you will learn to figure out what types you tend to prefer and be able to judge that better by whether it is sativa, hybrid, or indica and also by how it smells, looks, and tastes. There are also more edible options. I know places that have infused beef jerky, peanut snacks, and other things that aren't sweet and also concentrated oil or alcohol or glycerine tinctures are available so you don't even need to smoke or eat anything and just take a dropper in your mouth. I've found the oil to be one of the best things on my tongue after I bite it during seizures. I agree brownies are good and all but they get old and sugar in general is not what I need.

not me  . my seizures are

Submitted by martin1056@yahoo.com on Mon, 2017-09-18 - 17:42
not me  . my seizures are getting milder. my point  meds increased my complex partials   and decreased my simple partial  non event  seizures. . i prefer a 3 second simple seizure with out a black out . medical pot is doing that . retraining my brain not to black out . i went thru 13 drugs in 40 plus years  , no medication left to take  yet my neuro would not recc pot . several friends  suggested i try smoking again , one friends son smokes medical pot and it helps,. in six weeks i see a improvement , seven years of keppra had me seizing 2 times a month ''black outs'' made my seizures worse 

I just tried a High CBD oil

Submitted by LaGallina on Tue, 2017-10-31 - 19:00
I just tried a High CBD oil with a low THC tincture and I honestly can’t believe it. I was having seizures everyday and since I started, it’s only been four days, but I haven’t had any seizures! 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.