Cannabis is an important part of my seizure treatment plan along with regular seizure medication. I wanted to share that with everyone and let them know if there are any questions about it I am...
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Cannabis is an important part of my seizure treatment plan along with regular seizure medication. I wanted to share that with everyone and let them know if there are any questions about it I am...
Hi there. 25 yr old daughter has medicine resistant epilepsy. She has a VNS and RNS. Recent allergy to Lamictal. She has tried CBD oil but it did not work. Wondering if anyone has tried a...
I just purchased B-Complex vitamins, and there are some questionable ingredients that I’m my google research could cause seizures. What B-complex is the best choice to avoid seizures. Thanks!...
Ive had seizures in my sleep since i was in 3rd or 4rd grade. I am now 37yrs old, been on Tegretol XR since then. The medication controls my seizures well, but if im exhuasted with little sleep I...
My name is Ariel. I am 29 years old. I have had epilepsy since I was about 2. I had a 3 and a half hour grand mal when I was 2 and it caused permanent damage on my left temporal lobe. I then got...
I tried to share my story but it does not show up. This is not a very good Forum tool either poor design or on purpose
The Short story: I had 3 grand mal seizures when I was 32, the meds just did not work for me, took magnesium, trace minerals, regular minerals, all natural supplements, also took other supplements...
Fair Warning, I am a guy, I HAVE NEVER had any seizures before.
I'm posting because a woman I'm interested in dating does.
Prior to knowing her I didn't know anything...
I take a combination of Keppra, lamictal and Zaronyin and I am still not seizure free. I have absence seizures. I’m curious about CBD oil. Does anyone know if it would conflict with the...
Has anyone tried IV vitamin therapy to help manage their seizures? If so, what was your experience with it? What was the result? I know that there is a lot of doubt as to whether IV vitamin...
Hi, I’m heading to Amsterdam soon with my friends and I wanted to know if anyone had any advice about me trying weed or space cakes while I’m there. I was diagnosed with juvenile myoclonic...
I've been off this site since October, when I was complaining about the intolerable side effects of seizure meds. After talking to my neurologist about alternatives like diet and he told me...
I live in Missouri where CBD oil has become legal in the last couple of years if a neurologist gives you an "oil card." My seizures are caused by a brain tumor and my neuro-oncologist...
Hello, was just wondering if anyone else has had or is having the same issue. My 23 yr old daughter has had seizures since she was 4 up until she was around 10. She had the VNS implanted at age 7...
I’m recently diagnosed with simple partial seizures. Started having them about six months ago and then this last month I’ve had seizures Everyday, Sometimes twice a day and they are getting worse...
Hi all,
did you ever try getting rid of MSG in your food ? It's probably only for post-traumatical epilepsy (my case), but if you still cannot find a working medicine (or if your...
Hi all. I'm hoping that I can help someone. I have had genetic generalised epilepsy for 35 years. About 22 years ago though, whilst going to uni, it reached its peak. Some days three grande...
I have a question
Has anyone's doctor turned their VNS to high to where there has been problems? If so what was it. Cause mine turned mine up to high and I started to chick when I...
I'm on my 3rd failed med, with 3 failed "complimentary med" to boot. So I'm looking around. Last year I tried the Keto diet but I just don't have the discipline for it...
I am 60 I had my lat 1 n 2002 I had total of 3 b 4 I got the rot dose.I hac Ben taking the med depakote.I Ben talk every day for 15years I hav takn only 40 250 mg n 30 days I feel much beter. I...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
