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Telemedicine and Internet service

Tue, 04/28/2020 - 20:51
The need for telemedicine is great now for all. It is seen as a potentially useful tool for persons with epilepsy because of our driving / transportation needs. It's even been noted that persons in rural areas should benefit because our access to specialists is often restricted due to the distance we'd have to travel for treatment. Right now living in the rural area is an asset because it naturally provides great social distance. But access to high speed internet isn't the easiest thing to come by in rural areas. There is no cable TV service where I am. Internet via landline phone is terribly slow. I recently got hooked up with HugheNet for satellite service and found it doesn't provide and faster service. Even before internet usage increased with the COVID 19 outbreak I could not use ZOOM. I could not conduct a therapy session a couple weeks ago through blue Jeans. This outbreak will eventually pass and I may never need to use telemedicine. But I do receive treatment with RNS and once a week I need to upload data to my doctor’s office. I cannot afford to let slow internet service impair this essential part of my treatment. Will the Epilepsy Foundation give suggestions of the proper legislators to contact about this essential need?

Comments

Hi Birdman,Thanks for putting

Submitted by Anonymous on Mon, 2020-05-04 - 09:32
Hi Birdman,Thanks for putting this post up. The Epilepsy Foundation has been working hard to follow all the issues with telemedicine. I am sharing a summary of some things from our Advocacy department The Epilepsy Foundation advocates for all people with epilepsy to have access to quality, affordable, physician-directed and person-centered health care. With the COVID-19 pandemic, as you noted, how people access care is quite different. The Foundation has been advocating for and monitoring changes related to expanding access to care through telemedicine. Fortunately, Medicare has relaxed many typical restrictions to allow for most care to happen through telemedicine and private payers have largely followed suit. Medicaid already allowed for many health care services to be delivered through telemedicine. However, as you noted, just because the health insurer allows it does not mean people have access—which we have also been monitoring. The government realizes this and in some of the congressional COVID-19 relief packages that are now law, have included some provisions to help ensure that people have the internet capability in order to use telemedicine and other important aspects of remote life like distance learning. I’ve listed some of those provisions below. One of the best things you can do is that if you continue to have issues is to let your members of Congress know—they are likely monitoring such things in their district to inform future legislation. You can look up your elected officials through our Find Your Elected Officials tool which is on this website, on the righthand side. You can also learn more about all of our COVID-19-related advocacy on this webpage. 
  • $100 million for the ReConnect program to help ensure rural Americans have access to broadband.
  • $200 million for the Federal Communications Commission (FCC)’s Connected Care Pilot Program which supports efforts of health care providers to address COVID-19 by using telehealth to connect with patients.
  • $275 million for the Health Resources and Services Administration (HRSA) including $185 to support rural critical access hospitals, rural tribal health and telehealth programs.
  • $3.1 billion for VA Facilities and IT Support for Telemedicine including some funding for the VA to expand the capacity on existing IT networks to address the demand in services, and broadens VA’s tele-ICU and teleradiology capabilities and increased capability for telehealth visits.
  • A HRSA grant program to promote the use of telehealth technologies for health care delivery, education, and health information services. Telehealth offers flexibility for patients with, or at risk of contracting, COVID-19 to access screening or monitoring care while avoiding exposure to others.
  • A HRSA grant programs that strengthens rural community health by focusing on quality improvement, increasing health care access, coordination of care, and integration of services. Rural residents are disproportionately older and more likely to have a chronic disease, which could increase their risk for more severe illness if they contract COVID-19.
 If you need help finding who your legislators are - visit www.advocacy.epilepsy.com. Hope this helps! Epihelp and the Advocacy Department  
  • $100 million for the ReConnect program to help ensure rural Americans have access to broadband.
  • $200 million for the Federal Communications Commission (FCC)’s Connected Care Pilot Program which supports efforts of health care providers to address COVID-19 by using telehealth to connect with patients.
  • $275 million for the Health Resources and Services Administration (HRSA) including $185 to support rural critical access hospitals, rural tribal health and telehealth programs.
  • $3.1 billion for VA Facilities and IT Support for Telemedicine including some funding for the VA to expand the capacity on existing IT networks to address the demand in services, and broadens VA’s tele-ICU and teleradiology capabilities and increased capability for telehealth visits.
  • A HRSA grant program to promote the use of telehealth technologies for health care delivery, education, and health information services. Telehealth offers flexibility for patients with, or at risk of contracting, COVID-19 to access screening or monitoring care while avoiding exposure to others.
  • A HRSA grant programs that strengthens rural community health by focusing on quality improvement, increasing health care access, coordination of care, and integration of services. Rural residents are disproportionately older and more likely to have a chronic disease, which could increase their risk for more severe illness if they contract COVID-19.
 If you need help finding who your legislators are - visit www.advocacy.epilepsy.com. Hope this helps! Epihelp and the Advocacy Department  

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