Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

I'm terrified to do anything

Fri, 03/15/2019 - 02:19
Hi everyone! I've never done a forum before, so thank you for checking this out. I'm excited to join this community (I guess??). I have epilepsy and am TERRIFIED to do anything. I wake up each morning working if I will have a seizure, then I remember stress can influence a seizure, then I get stressed about being stressed. Since I am in college, if I fall to get a good night's sleep I go to bed scared to wake up in the morning. I am afraid something will happen at my internship, or on the street, or anywhere, and that I will be all alone. I try not to think about it. Up until this point I haven't been worried about my condition, it's just now that I've passed the 1yr mark since my last seizure (yay!) I've been becoming more afraid. Although I can kind of tell when one is going to happen (I feel out of body-ish and not mentally present, and it has always happened in the morning after not so good sleep). I'm not sure where I am going with this, it's just nice to talk it out and not have someone look at you like a puppy with no legs or something. What have you done if you've experienced feelings like this? Thank you.


Hey there, I definitely know

Submitted by Believer_59cd4d81a99cf on Sun, 2019-03-17 - 00:35
Hey there, I definitely know what you're talking about. I'm in grad school and work 2 jobs, and even though I've had seizure control for a while, like you said you have, the anxiety didn't just go away. I still constantly and sporadically find myself wondering what will be if I have one here, have one now, have one at work, at school, on the train....but the longer I go without a seizure, the easier it is to tell myself that:"maybe I will have one, but I haven't in a while, and there's no reason to think it HAS to be today. So IF I have one, I'll deal with it then."So even though I still get anxious pretty often, most of the time I can answer myself and kind of "push off" the fear. I hope this is helpful! But just know you're not alone :)Best of luck,B

Honestly dude, my crazy

Submitted by Misjoey101 on Thu, 2019-03-28 - 18:34
Honestly dude, my crazy helicopter parent has made me someone who's less terrified. I grew up with a mom who enforced things like  "______ walk you're sister to the bathroom in case she has a seizure."   That is.....a mom that kept a baby monitor in my room until I was 12 and met with my high school teachers every year. I just wanted to get away to a world where I COULD CARE LESS. Finally, I can AT LEAST ride the bus.  

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.