Community Forum Archive

Hi, Thank you for posting and we understand your concerns. Treatment and how the body may react to certain medications including supplements or vitamins, varies for each individual. We cannot determine if you’ve been experiencing seizures or have TLE.  It’s important that you’re following- up with your healthcare team to explore this further. Many clinics and offices are now offering telemedicine options for non-emergencies if you’re unable to see your doctor in person currently. Ask your doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you. You may want to consider seeing a neuroendocrine specialist, neurologist with training in hormone disorders and their effects on brain function. These physicians are usually found at hospitals or health care centers with programs devoted to epilepsy treatment, often called Comprehensive Epilepsy Centers. https://www.epilepsy.com/living-epilepsy/women/all-women/hormones-and-epilepsy . It’s also important to document how you're feeling and the symptoms you describe experiencing in detail, (like you've done in your post), which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, track episodes, manage medications and more, which can be shared with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline 

Hi there, I don't recommend self-diagnosing, it's always good to meet up with a neuro when you have a concern. However if it's a reassurance to you, I take both anti-seizure meds and focus meds.