My name's Emma and I had my first ever seizure (tonic-clonic) last September at TAFE (a type of practical college in Australia).
Since then i've had two more tonic clonic seizures and i'm pretty sure i've had quite a few of either the focal onset ones or the absence ones. I have absolutely no prior history of seizures/fainting or anything like that. Although, I have been diagnosed with ADHD since I was 16 and Depression + Anxiety since I was 14.
It's all been pretty random and out of the blue and i've found that most young people with epilepsy have been experiencing it since childhood but I'd like to know if there's anyone else that's in the same boat as me.
I've had a bunch of MRI's, CT Scans, EEG's and Telemetric Studies but everything keeps coming back totally normal (even though it's clearly not) so it's getting pretty frustrating. I've been on Keppra since last November and i'm pretty sure that's been preventing the Tonic-clonic Seizures cause the only times i've had them has been when the neurologist tried bringing down my dosage in March + last week when I ran out of meds and didn't take them for two days. It's annoying though cause they've lowered the dosage for my ADHD meds cause they don't want it to interfere with my seizure meds but that's made it really hard for me in my everyday life in terms of focus and mood.
Hope to hear from some of you x