Community Forum Archive
Topic: Teens Speak Up!
A place for Teens Speak Up! alumni and parents to share their stories and stay connected.
05/2019 | 5 Comments
Heya My name's Emma and I had my first ever seizure (tonic-clonic) last September at TAFE (a type of practical college in Australia). Since then i've...
05/2019 | 2 Comments
HI Everyone, My daughter was just diagnosed with this yesterday. Her seizures are not even seen by the naked eye but has a lot of seizure activity...
01/2019 | 0 Comments
Hi Everyone who is reading this, my name is Meg I’ve had epilepsy since I was 3 when I was young I use to stare into space, choke on food and then...
11/2018 | 0 Comments
I want to educate more people about Epilepsy and tell them my story but I don't know where to start, how can I educate more people about Epilepsy?
11/2018 | 1 Comments
This is how I feel with Epilepsy (Seizures) in my life!!!!!!!!!!! Alone Sad Not Normal A Freak A loser Depressed A baby (because there people who...
09/2018 | 2 Comments
Hi so basically I am having these cluster seziures. For anyone who does not know it means I am having 5+ seziures in 2-3 hours. This is causing me to...
05/2018 | 0 Comments
2 years ago I was diagnosed with cancer, 1 year ago insomnia put me in the hospital for 25 days, 2 days ago I was diagnosed with epilepsy after almost...
04/2018 | 2 Comments
Hello my name is Nicole, I'm from Ecuador I'm 16 years old, since I was 6 years old I have suffered from this disease. It's a little hard to me...
03/2018 | 1 Comments
Hi so this is a bit complicated so I’m going to try and sum it up. One day I took all my seziure medications (like always) but then I had a small...
09/2017 | 2 Comments
Hello my name isAllison I was diagnosed with epilepsy at birth but I did not have any seziures (other than little staring ones as a baby) until I was...
07/2017 | 6 Comments
Hey to anyone who actually reads this, I'm Aleisha, I'm 16 and in Grade 12. I have a million things wrong with me. They have been trying to figure out...
03/2017 | 1 Comments
Hello Everyone As of the last month, I have been experiencing odd symptoms that I think may be a brain lesion. I have little to no appetite I have...
08/2016 | 1 Comments
hello everyone, I'm not really sure how to begin this because I'm so confused. but let me try and sum it up without sounding too confusing. the first...
06/2016 | 1 Comments
Hi guys, I am 18 years old and have controlled epilepsy and have been seizure free for a year by taking medication. Unfortunately, just having this...
04/2015 | 2 Comments
Hey everyone I just recently started a campaign called Making A Difference focused on topics such as bullying self-acceptance mental health issues...
08/2014 | 0 Comments
Hi, I'm a Girl Scout in the Washington, DC area and for my Girl Scout Gold Award Project, I'm sponsoring a free spa day for teen girls with epilepsy...