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2.5 years seizure free is a
Submitted by Amy Jo on Fri, 2019-03-15 - 22:09
2.5 years seizure free is a reasonable time to consider weaning - many people would try weaning after 2 years seizure free, some may as early as one year. Of course it depends on how much people know about the epilepsy, if the diagnosis was JME, they probably wouldn't recommend weaning off at all. It could be by weaning that you'll learn more about her epilepsy, not everyone has seizures remit. Seizures (and bodies) can also change to a point the meds don't work the same way as before even if not weaning, meds are a mixed bag of weirdness that is so very individual. There are a lot of med choices because for many people they work fine, but no med works fine for everyone and few meds work forever. Our child is going to try weaning off this summer, she'll be just over a year since the last reported partials but just under a year from one questionable episode (the partials were only partly controlled with meds so we hope we are seeing her grow out of the partials at least, would like to know if the generalized seizures still occur without meds). For our child, keppra was awful so very thankful we only had it for 2 months.Please get your daughter's rash checked out right away to see what's going on. Epilepsy medications can very rarely have dangerous rashes (SJS and DRESS) or other unusual side effects that while super rare, are very very dangerous. If you started any new laundry, soap, shampoo or other such products that could trigger an allergy, that could also be relevant. As for the seizure, if your child started another drug, or has some hormone changes still occurring, that could impact seizures (e.g. cold medications can lower seizure thresholds for some people, some women have more seizures at certain times in their cycles, etc..). Illness, stress and other things can be seizure triggers so there's a lot of possibilities.