My name is Carmen Tschumy and I've been having seizures since I was 13 or 14 years old. I honestly don't remember.
I'm 17 now, and I honestly believe that I won't outgrow this condition.
Sounds pessimistic, but it's hard knowing that you've loved your life without epilepsy some time ago. Let me start by explaining how this happened. In middle school, I was diagnosed with Major Depressive Disorder and I was given the prescription drug Welbutrin XL. I was UNAWARE of seizures being one of the side effects. Actually, it was considered a severe but rare side effect. And I didn't find out until it was too late. It was in March of 2011 and I had gotten home from school. I was having nystagmus which was a warning before a seizure in my case. Eventually, when my nystagmus happened a 3rd time, I went into a full blown, violent grand mal seizure. I thought I was gonna die. I woke up in the hospital being told that I had a seizure. I was scared and I refused to believe them. That same day, I was put on Keppra and taken off my Welbutrin. I was free of seizure activity for 3 months. I had my second seizure on the last day of school which was strange. The Welbutrin was out of my system by then, so why did I have another seizure? I was kept in the hospital for 3 days and left with a higher dose of Keppra. I didn't understand. I told myself that that antidepressant ruined my life.. I could no longer do the things I loved.
Til this day, I've been having seizures to no avail..
But the ones I'm having now are a lot stranger. I keep having auras, but no seizures.. And it's been going on non stop for 2 days. I've been taking my Lamictal XL regularly, but there's no end. I'm in constant fear of breaking out into a grand mal. There are times where I can't control the movement of my head and my chest feels constricted, but I'm wide awake. What's going on? I'm petrified.