Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

surgery complications

09/2015 | 1 Comments

Has anyone ever had surgery complications? I'm in the waiting process now...I had depth electrodes put in my head in July and they had complications...
VNS side effect on hody

09/2015 | 3 Comments

This is going to sound silly but I got my vns implant 7 months ago and Ive noticed some changes in my body. Mainly a female question but it seems...
surgery complications...Help

08/2015 | 0 Comments

Hi everyone....I went into the hospital at the end of July for depth electrode surgery, then they sent me to rehab for a week or so....their were some...
Left temporal lobe surgery

07/2015 | 2 Comments

Hello All, Two years ago I went through the testing to see if surgery was a possibility. They had determined that because I had activity on both sides...
1 week postop VNS

06/2015 | 2 Comments

I am exactly 1 week postop from having my first VNS implant. It's horrible. That's all i can even manage to say.They had to turn it on immediatly...
Vns lead revision

06/2015 | 1 Comments

I just wanted to tell a bit about my vns implant. I had a vns lead revision 10 days ago. I had a bit of an unusual complication that developed months...
Headache Remedies

06/2015 | 1 Comments

Hi everyone, I had my epilepsy surgery four years ago. Since then, I have been having powerful headache 24/7 to this day. I have tried both...
Upcoming VNS Surgery for my daughter

06/2015 | 4 Comments

Hello, this is my first post. My 18 year old daughter will be getting a VNS device in August. We're concerned about side effects and if this will...
Hiccups and VNS

06/2015 | 2 Comments

Hi, i want to let people lnow about the possible side effect of the VNS. My daughter had the hiccups for a year.... All, all night. We ended up doing...
Has VNS actually helped anyone?

05/2015 | 3 Comments

Hi all! This is my first post here but i'm researching for my DH. He had surgery 15 years ago and he was fairly controlled with meds. Then last year...
Hardness around VNS machine?

05/2015 | 3 Comments

Hi everyone. I had a VNS implant put in a couple of years ago. Recently, we noticed that the area around the implant is getting really hard & I now...
Frontal lobe epilepsy surgery

05/2015 | 1 Comments

My daughter had frontal lobe epilepsy surgery 6th jan 2015 tonight 4 months later she has had a seizure is this normal or has the surgery been...
2 step left temporal lobe surgery

04/2015 | 0 Comments

Has anyone had a 2 step left temporal lobe surgery? My neurologist is thinking, that my best option is a 2 step surgery.....the 1st surgery they would...
Craniotomy information anyone?

04/2015 | 0 Comments

Hello everyone, I will be having my second (left interhemispheric) craniotomy on thursday and I was wondering if anyone has any information. Im really...
Vns drama

04/2015 | 5 Comments

just wondering if anyone else has had drama with a vns implant? I was all for this thing and it did help. Except it had to be turned down because it...

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