Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

Intercranial Depth Electrode Surgery

10/2016 | 0 Comments

I recently had intercranial depth electrode surgery and have had some weird feeling side effects such as a stinging tingley feeling. Has anyone else...
Advice on right temporal lobe surgery

10/2016 | 8 Comments

Hi there, Just looking for some advice and people's experiences with right temporal lobe surgery. Specifically if it stopped seizures completely and...
Focal epilepsy from brain trauma

10/2016 | 1 Comments

My husband sustained a blow to the right frontal region of his head about 18 years ago. He was just diagnosed with focal epilepsy after he crashed his...
Aura feelings

10/2016 | 2 Comments

I am trying to make the decision to seriously consider surgery. I am getting mixed signals. My auras are scary as hell. I read some say they feel like...
Developing Device for detecting seizures?

09/2016 | 0 Comments

Hi, We are developing a new wearable non-intrusive device to detect seizures (especially in children) so the parents or guardians can be alerted. I am...
VNS?

09/2016 | 2 Comments

I have been on many different medications with little success. Depakote has worked extremely well to control my seizures. Course not something you can...
Hippocampus MRI Laser Surgery

08/2016 | 0 Comments

I had the MRI hippocampus surgery a week ago. I am noticing strange things. Anyone else have it that will talk to me?
Pulseguard monitor

08/2016 | 0 Comments

I have heard about this new monitor which alerts parents or carers when the user is having a seizure. Sounds really good. Does anyone else have any...
Parietal Lobe Surgery?

07/2016 | 2 Comments

Hello everyone, want to see if anyone has went through with surgery for Parietal Lobe epilepsy and what was your outcome? I'm going through tests...
Double vision after surgery anyone?

06/2016 | 1 Comments

Had a right temporal lobectomy and got double vision side unexpectedly. This happen to anyone? If so, did it get better and if so how long did it take...
Vns model 106 problems.

06/2016 | 3 Comments

I was wondering if anyone had problems with their Vns malfunctioning after surgery? I had the new 106 model implant in March 2016. The 106 was a...
Video EEG/ surgery

05/2016 | 1 Comments

I have one scheduled on Monday. I wrecked my car in January because I had a black out seizure and my doctor said it was time for surgery. My seizures...
VNS bracelet alternatives

04/2016 | 5 Comments

I'm looking for a bracelet for the existing magnet for my VNS implant. The super sexy one they provide is... well... not so sexy. Has anyone found...
Ablation laser surgery

03/2016 | 0 Comments

Hi guys my name is Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier...

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