Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

ECOG

03/2018 | 2 Comments

So I’m having my deep tissue probes put in on May 2nd and I’m looking for ANY advise on what to expect on how I will feel pain wise or anything after...
VNS and Pregnancy

03/2018 | 1 Comments

Hi, I’m looking for advice on vns therapy and pregnancy. Is it possible? I’ve been trying to look for information regarding this however they only say...
Intractable Epilepsy

02/2018 | 0 Comments

My name is Allen. I’ve been through countless tests and medications. And I have been through 2 brain surgeries. One at UNMH in Albuquerque, New Mexico...
Detection Device

02/2018 | 4 Comments

I have a 20 year old Grandson away at college and his Mom would like to monitor. He is an athlete and has occasional night seizures. Anyone have...
VNS???

01/2018 | 3 Comments

I'm new here so this is my first time posting (hope I'm doing this right)! :) I've had epilepsy since 1988. I had surgery 3/1995. Had great control...
CBD/Surgery

01/2018 | 19 Comments

Hello everyone my name is mike, and I have complex partial seizures caused by right temporal lobe epilepsy. I have viewed this forum a few times, but...
VNS

01/2018 | 0 Comments

I had a vns stimulator put in not long ago. I'm having a real bad side effect. I'm getting migraine level headache everytime I use the bathroom. I was...
Drop Support

12/2017 | 0 Comments

Hello Everyone, May name is Edwin Aragon, brother of Leslie Aragon who currently suffer's with LGS, Atonic, and Tonic seizures. One of our families...
Trigger-Preventing Glasses

11/2017 | 1 Comments

Hi all, I'm trying trying to gauge interest for a possible start-up venture. We believe we can create a special pair of glasses that can filter out...
Embrace Watch Vs. SeizAlarm App

11/2017 | 1 Comments

Has anyone had experience using the above-mentioned seizure monitoring device or app for Apple watch? Which works better? I have had simple partial...
Can surgery cure epilepsy?

11/2017 | 4 Comments

My son, Billy is scheduled for surgery and I am concerned that SUDEP will occur before that surgery happens. I am constantly checking in while he...
brain surgery

11/2017 | 0 Comments

Does anyone know if a blood clod can be removed or drained I was assaulted put in a coma & torture in the hospital in late 1996.I ended-up with...
Post surgery question

10/2017 | 9 Comments

Hi all! Quick back ground I was diagnosed in 2008 complex partials with a grandmal tendency. I had my rphone gut hippocampus removed in sept of 2010...
Epilepsy surgery

10/2017 | 6 Comments

Hello guys i just underwent my epilepsy surgery on sept 30 on my right temporal lobe surgeon said everything went a success I'm here sharing my story...
RNS on post surgical patients

10/2017 | 1 Comments

I want to hear from others who have had the RNS system implanted into an area where doctors previously removed tissue. I had one doctor at a major...

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