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Frontal lobe surgery soon- looking to chat with someone that has had surgery

Sat, 09/21/2019 - 20:53
Our son is 12 and will be having frontal lobe surgery in Nov. I was hoping to have him connect with someone that has experienced brain surgery that could yell us about their experience and feelings to better prepare him. Thank you

Comments

Hi Benjamin1,  Thanks so much

Submitted by Anonymous on Mon, 2019-09-23 - 10:16
Hi Benjamin1,  Thanks so much for posting. Wherever you are, one of the most important things to help live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsLocal Epilepsy Foundation offices often have activities that can help connect people in the community with others who may have similar experiences. For assistance finding resources, support groups, events, and programs in your community, contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliatesYou may also contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, [email protected]   epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals and additional support.  Our Kids Crew Program is free to join and is for kids ages 14 and under of all abilities, who want to learn, spread awareness, and make a difference. And have fun, too! Learn more about the Kids Crew Program and how to register by visiting:  https://www.epilepsy.com/make-difference/get-involved/kids-crewIt's important to remember when preparing for epilepsy surgery that every child's experience and path is different. Review our list of commonly asked questions about epilepsy surgery, learn more about the recovery process and common themes for people living with epilepsy &family members during their journey through epilepsy surgery, here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/preparing-and-recovery-after-your-child’s-epilepsy  It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.  https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfIt can be helpful to connect with other parents who care for those with epilepsy, to ask questions, share experiences, find & give support to each other, by visiting:  https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents  https://www.epilepsy.com/living-epilepsy/our-programs/individual-family-servicesThe Wellness Institute: epilepsy.com/wellness  ,provides tools and strategies to better assist your loved one and support you in your important role.For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools

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