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Speaking just before a seizure?

Alrighty, I have a question for anyone that cares to read this. XD

 Has anyone tried to talk right before a seizure? Like call out or anything?

 Because before my first seizure, I remember waving my hand in front of my face and not seeing them (which totally tripped me out; I eventually figured out my eyes must have kept the last image they saw imprinted on my retinas. Which is kinda cool in a strange way.) and I called out to my friend, or I THOUGHT I did. Haven't had a chance to ask her if she heard or not, though.

 My second one was when I was in the basement of my house, and I THOUGHT I screeched for my dad, but apparently some sort of strange mumble came out, but thank God he heard anyway. I could have sworn I yelled.

 So, that means my linguistic/vocal centre shut down, right? Has anyone else tried to alert people they were going to have a seizure? Because I need to know if I can manage to get someone's attention before I seize.

By the way, I have grand mal/tonic clonic seizures and my aura lasts about 10 seconds. Starts with heaviness in the limbs, then the sight goes, then I am down and out. Recovery takes about two hours.

 Thanks in advance!

-Azari

Comments

Re: Speaking just before a seizure?

Submitted by mandie2020 on Tue, 2010-07-06 - 02:29
hi, i can talk and get up before i have a seizure ,but also haznt been the best ideas iv had as i usually end up on the floor because i cant make it to anyone and end up smacking my face.but i do shout and even tho i dont remember my sons name i can sort of scream.I have learnt to stay calm and dont try to get up as i have had stitches in my face and black eyes.Dont no if this is any help to you but if you have any questions dont hesitate.mandie

Re: Speaking just before a seizure?

Submitted by phylisfjohnson on Tue, 2010-07-06 - 09:11

Hi Azari,

When I'm about to have a seizure, my mouth fills up with a flood or saliva and I don't really have control of my muscles.  So, I just take advange of my auras and hit the floor, before the floor hits me!    Phylis Feiner Johnson www.epilepsytalk.com

 

Hi Azari,

When I'm about to have a seizure, my mouth fills up with a flood or saliva and I don't really have control of my muscles.  So, I just take advange of my auras and hit the floor, before the floor hits me!    Phylis Feiner Johnson www.epilepsytalk.com

 

Re: Speaking just before a seizure?

Submitted by Jk606 on Tue, 2010-07-06 - 15:11

My last tonic clonic (exactly a week ago) my mom was with me.  Though I have no memory of doing this, she said I just stared straight ahead and was repeating the word "NO" just before the convulsions started.  Evidently I knew I was going to have one, unfortunately all my memory has been erased.  So, I may have auras, but if I have no memory after my seizure of this "aura", then they are absolutely useless.  Its good you have remembered, that way you can have some idea that you are going into a tonic clonic and if there's time you can get somewhere relatively safe.

take care.

My last tonic clonic (exactly a week ago) my mom was with me.  Though I have no memory of doing this, she said I just stared straight ahead and was repeating the word "NO" just before the convulsions started.  Evidently I knew I was going to have one, unfortunately all my memory has been erased.  So, I may have auras, but if I have no memory after my seizure of this "aura", then they are absolutely useless.  Its good you have remembered, that way you can have some idea that you are going into a tonic clonic and if there's time you can get somewhere relatively safe.

take care.

Re: Speaking just before a seizure?

Submitted by 3Hours2Live on Tue, 2010-07-06 - 21:05
Hi Azari, People usually notice my impairments if I'm speaking (or trying to speak) during the stages of a seizure. When I'm not speaking, most of my simple partial seizures remain unnoticed by others. Epileptic speech is a vast, complex subject, and I just stop trying to speak when an aura happens, because when I do, the results vary from "speaking-in- tongues" to primitive noise or no sound at all. People make all kinds of assumptions based on my epileptic speech. When my partial seizures go into secondary tonic-clonics, the "Epileptic Scream" happens at times. Which particular stage in the tonic-clonic a particular type of screamm occurs is difficult to determine, but from reports, the one right near the start is the loudest, with any following loud forced vocal sounds more similar to "Valsalva maneuver" and "Petechial Hemorrage" associated phenomena. Some epileptic histories cite the Epileptic Scream as being louder than any voluntary or fright reflex screams. Animals often have the Epileptic Scream also. In humans, it's sometimes called "Epileptic Cry" (Page 3, first column, 4th paragraph): "With a severe and generalized tonic contraction at the onset, air is forcibly exhaled through closed vocal cords, giving the “epileptic cry” of peculiar and piercing quality." From: http://www.clinchem.org/cgi/reprint/25/6/889 In rabbits, (Page 16, first column, first paragraph): "At 10 mm after the third hour, the rabbit let out a typical epileptic scream (see part I, this issue) and extended his front and hind paws, throwing his head back and arching his body in a typical opisthotonus position. After about 2 mm, the animal went into generalized convulsions and died within about 1 mm." From: http://www.clinchem.org/cgi/reprint/25/6/898 Dostoevsky also made the epileptic scream part of a great work of literature. Tadzio

Re: Speaking just before a seizure?

Submitted by angelacarwile on Wed, 2010-07-07 - 08:56
I have relatively the same symptoms as Tadzio. If I try to speak it sounds garbled or inaudible, but I feel like I'm screaming inside my head. Once the seizure advances I begin to scream, cry and drool. I usually remember the first part of the scream. Maybe the reason our speech is effected is because the part of our brain that controls that function, goes out to lunch for a while... As soon as I feel one coming on I get terrified and feel a loss of control. I immediately tear up and try to talk, but I only get out buh-buh sounds. On good days, I was able to get someone's attention before going down, but that usually ended up with a face plant in the floor if no one caught me. Another aura or symptom I get is breaking out in hives on the right side of my face, chest and arms right before. Weird? I'm still fairly new to E myself and I've often had these same questions. You're not alone :)

Re: Speaking just before a seizure?

Submitted by Mileena on Sat, 2010-07-17 - 00:13
I had tonic-clonic and if i told some1 they would FREAK OUT

Re: Speaking just before a seizure?

Submitted by Tiffany K on Sun, 2010-07-18 - 17:35

Interesting... I thought I was the only one that did this!  When I realize my partials are turning into a grand mal I can't coherently speak, I've tried but it just comes out as mumbled weird sounds.  I have finally figured out that if I need to alert my husband or whoever I'm with that one is coming I don't try to use words anymore, people that are close to me and know about the seizures know my signal is that I look at them and grab their arm and one is on the way.  Also, if I'm in another room and need my husband to come in because one is one the way I just let the sounds come out as loud as I can to get his attention, it works pretty good!  

At few years ago when I realized this happens when a seizure would come, if I had someone in the room with with I would intentionally try to talk and when it was over would ask tham what I said and was always told it was just jumbled sounds.  Also, I don't know exactly what kind of epilepsy you have but mine is in my left temporal lobe.  I also just found out last year when I tried to have the surgery that the focus of my seizures is imbedded in the language center of my brain, so I wonder if that has something to do with it???  

Tiffany K.

Interesting... I thought I was the only one that did this!  When I realize my partials are turning into a grand mal I can't coherently speak, I've tried but it just comes out as mumbled weird sounds.  I have finally figured out that if I need to alert my husband or whoever I'm with that one is coming I don't try to use words anymore, people that are close to me and know about the seizures know my signal is that I look at them and grab their arm and one is on the way.  Also, if I'm in another room and need my husband to come in because one is one the way I just let the sounds come out as loud as I can to get his attention, it works pretty good!  

At few years ago when I realized this happens when a seizure would come, if I had someone in the room with with I would intentionally try to talk and when it was over would ask tham what I said and was always told it was just jumbled sounds.  Also, I don't know exactly what kind of epilepsy you have but mine is in my left temporal lobe.  I also just found out last year when I tried to have the surgery that the focus of my seizures is imbedded in the language center of my brain, so I wonder if that has something to do with it???  

Tiffany K.

Re: Speaking just before a seizure?

Submitted by tonialpha on Sun, 2010-07-18 - 18:15

There was an article about warning or aura before a seizure and this is interesting you mention this.  This brings tingles to me.  I want to speak to people and I can hear them but my words become jarbled. Sometimes the EEG doesn't record anything and other times it did. I want to say something to my husband or my family and they hear something but they realize I have jarbled speech and I drool. 

 I lay down and rest and let my body rest  until I feel confident I know where I am again.  I sometimes have trouble after a seizure speaking too.  This subsides.  Thank you for your question. 

 

There was an article about warning or aura before a seizure and this is interesting you mention this.  This brings tingles to me.  I want to speak to people and I can hear them but my words become jarbled. Sometimes the EEG doesn't record anything and other times it did. I want to say something to my husband or my family and they hear something but they realize I have jarbled speech and I drool. 

 I lay down and rest and let my body rest  until I feel confident I know where I am again.  I sometimes have trouble after a seizure speaking too.  This subsides.  Thank you for your question. 

 

Re: Speaking just before a seizure?

Submitted by teachergreen on Sun, 2010-07-18 - 20:19

Interesting! This is the same experience I feel sometimes. My family says I try  to speak but make no sense. This is probably because the seiuzre is happening in the language part of my brain.

If I'm writing and have a seizure I just scribble. This doesn't happen often. But I've noticed it.

Today I've been trying to rest but i'ts hard to keep my body still. I keep thinking of things to do, get up. It's frustrating.

If I have an aura and can use the magnet w the vns it seems to help. it doesn't always work out this way.

Interesting! This is the same experience I feel sometimes. My family says I try  to speak but make no sense. This is probably because the seiuzre is happening in the language part of my brain.

If I'm writing and have a seizure I just scribble. This doesn't happen often. But I've noticed it.

Today I've been trying to rest but i'ts hard to keep my body still. I keep thinking of things to do, get up. It's frustrating.

If I have an aura and can use the magnet w the vns it seems to help. it doesn't always work out this way.

Re: Speaking just before a seizure?

Submitted by mel1231 on Mon, 2010-07-19 - 03:23

From childhood, my partial complex seizures were misdiagnosed as anxiety attacks due to the sense of intense fear and deja vu.  Almost every time I had one of these "anxiety attacks", I would announce it's arrival!  I would feel my heart start to race, and just before deja vu would set in, I'd announce "I'm having a panic attack!"  Often this would be followed by me walking off across the room or wherever.  When I finally got diagnosed at age 27 with complex partial seizures, "I'm having a panic attack" became "oh S**t" or something along those lines.  My neurologist said that's a textbook symptom. 

From childhood, my partial complex seizures were misdiagnosed as anxiety attacks due to the sense of intense fear and deja vu.  Almost every time I had one of these "anxiety attacks", I would announce it's arrival!  I would feel my heart start to race, and just before deja vu would set in, I'd announce "I'm having a panic attack!"  Often this would be followed by me walking off across the room or wherever.  When I finally got diagnosed at age 27 with complex partial seizures, "I'm having a panic attack" became "oh S**t" or something along those lines.  My neurologist said that's a textbook symptom. 

Re: Speaking just before a seizure?

Submitted by TheSmokeMonster on Tue, 2010-07-20 - 03:05

Wow! I am really new to this, but this sounds exactly  like what I have done nearly my entire life.  It's quite incredible how seizures can go misdiagnosed as anxiety attacks for over a decade.  I don't mean to sound harsh or mean, but I am steering clear of anyone in the psychology profession for a while.  I was never even told I should see a neurologist or anyone else as a possibility for these 'uncurable' "panic attacks"...  I just thought I had really bad panic attacks my entire life and the medicine they gave me did nothing but make me worse.  This has been happening since I was a young girl and I just turned 26.  I got my first bottle of anti-convulsants a week ago.  Standing in line too long.

 

Wow! I am really new to this, but this sounds exactly  like what I have done nearly my entire life.  It's quite incredible how seizures can go misdiagnosed as anxiety attacks for over a decade.  I don't mean to sound harsh or mean, but I am steering clear of anyone in the psychology profession for a while.  I was never even told I should see a neurologist or anyone else as a possibility for these 'uncurable' "panic attacks"...  I just thought I had really bad panic attacks my entire life and the medicine they gave me did nothing but make me worse.  This has been happening since I was a young girl and I just turned 26.  I got my first bottle of anti-convulsants a week ago.  Standing in line too long.

 

Re: Speaking just before a seizure?

Submitted by pikachucries on Wed, 2011-05-18 - 03:47
Whenever I have one, before I fall on the ground, I wail. It's the only thing that comes out! So I'll wail, "mom," and they know it's a seizure. Also, I have said things before I go unconscious, but my family tells me they don't hear it. The first time i had one, apparently I woke up after thirty minutes and screamed at the sight of my sister. I don't remember that at all. Usually, I'll know. Everything in sight either starts shaking, or I get this buzzing noise in my ears. I think they're auras.

Re: Speaking just before a seizure?

Submitted by Colorguardchicka on Tue, 2011-07-12 - 00:28
I had absence seizures where you space out for a few seconds but I just had my first grand mal last Wednesday.  I was actually at the mall ordering food and I was with my boyfriend.  According to him, I was slurring a lot and I was speaking where no one could understand me.  To me, however, I thought I was speaking fluent English where everyone could understand me; apparently not.  I remember blanking out a lot and then next thing I knew, I was in my boyfriend's lap and the paramedics were evaluating me.  According to all that were witnesses, I couldn't answer some of the questions and I was still in and out of it. 

Re: Speaking just before a seizure?

Submitted by cas.parker17 on Sat, 2011-12-10 - 15:15
before i have a seizure, everything starts going blurry and it almost feels like im underwater, and my hand starts clenching. i think that i've made some noises and tried to talk, but i don't think much comes out. doctors have told me that if i feel like im going to have a seizure, i should just stop and lay down where ever i am. But usually my seizure comes pretty quickly and i don't have time to do this :/ don't know if this is the same for you though. when i had my third seizure i wasn't with anyone i knew, but the people around me found the emergency contacts on my phone and got to my mom, so it might be a good idea to do something like that or get a bracelet telling people what to do if you have a seizure. hope this helps, cas

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