Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Dont trust neurology

06/2019 | 1 Comments

Since 2014 ive been having seizures. Test results show to epilepsy. They tell me that they dont know what causes the seizures so they put me on...
My experience...

06/2019 | 2 Comments

Hi, well i just wanted to share my experience with epilepsy i hope this can help or entretain someone, im 26 now and i had my first seizure at 23 so i...
altered sensorium

06/2019 | 1 Comments

A year and a half ago was taking Keppra and Vimpat. Doctor decided to add Fycompa. Experienced severe altered sensorium (acute psychosis?) within a...
Spontaneous dizziness w/ other symptoms

06/2019 | 2 Comments

I am having weird spontaneous dizziness that happens whether I'm sitting or laying still, and even when I'm walking. Doesn't discriminate between...
need advice

06/2019 | 5 Comments

My Fiance and I want to have a family one day. I want a baby so bad but I'm so afraid . I have epilepsy and I'm afraid of having miscarriage or...
EEG results

06/2019 | 1 Comments

Have good news: Everyday, did a therapy (similar to acupressure) to myself the month before having EEG. Test results showed no sign of epilepsy. Now I...
No help for people with CBD Prescription

06/2019 | 3 Comments

I live in Ga., My son lives in East Tx. My son is now 44 years old. As a kid he was diagnosed with Petit Mal absence seizures. Three years ago he...
I will not let this define me.

05/2019 | 2 Comments

I have had seizures pretty much all my life, I won't go into detail because I be typing up a book. I use to be ashamed of my disorder, I fell into...
My Story

05/2019 | 1 Comments

Now knowing what TLE is and what it can do has put an internal spot light on my past. Growing up I felt like any other regular kid, playing, joking...
This is taking over my life

05/2019 | 4 Comments

Hello I'm Nicole I was diagnosed with TLE as a child and when I was 14, stopped taking meds, but I think my seizures just changed and never stopped...
Parents dealing with my epilepsy

05/2019 | 2 Comments

I was diagnosed officially three months ago with absence seizures along with epilepsy. Since then I would have a seizure every 15-25 days. My last...
Complex partial seizures

05/2019 | 2 Comments

Hello! First timer on this chat room. I am 43 and had been seizure free for 8 years until 5 days ago. I began having complex partial seizures at 33...
Seizure free and AEDS free!!

05/2019 | 3 Comments

In year 2004, I started to have convulsive seizures at my freshman years in the university. After my second convulsive seizures within 5 days after...
Epilepsy and drugs

05/2019 | 6 Comments

Hi, I'm Stella and I've been diagnosed with juvenile myoclonic epilepsy since 2017. I've had five seizure attacks and most of them were because of...
my life with epilpesy

04/2019 | 8 Comments

Hello my name is Hayleigh, I am 15 years old and has had epilepsy since birth. I am 6 months siezure free! I really want to get to 1 year but I feel...
Seizures happening alot

04/2019 | 3 Comments

Hello... I'm reaching out because I feel I have no support. To make a long story short... I'm 36 and after having a couple of seizures growing up...
Meds

04/2019 | 3 Comments

HI I am on Lamictal, was 50 morn and 50 night. After a seizure, my neuro changed it to 75 morn and 75 night. Now after being dizzy, it is back to 50...
Looking for clues

04/2019 | 2 Comments

Dear all, I am Raghav Dubey from India. I am 12 years old and a student in seventh grade. Since last year October, I have epilepsy seizures at least...

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