Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Time in between episodes

10/2019 | 2 Comments

I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the...
Advice please?

10/2019 | 3 Comments

Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always...
A Newbie...unfortunately

09/2019 | 4 Comments

In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure...
Dreamed about having a seizure

09/2019 | 1 Comments

I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I...
Seizure

09/2019 | 2 Comments

My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3...
epilepsy?

09/2019 | 1 Comments

I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a...
Smoking cannabis

09/2019 | 2 Comments

I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day...
Friendless 4 ever!

09/2019 | 2 Comments

Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I...
First time seizures

08/2019 | 1 Comments

my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with...
Epilepsy and psychogenic

08/2019 | 5 Comments

Hello, My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have...
Hi ! is lamotrigine/lamictal any good?

08/2019 | 1 Comments

hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the...
Epilepsy and Stress

08/2019 | 3 Comments

To whomsoever concerned, This is a story, the story I’d like to share with you, the story of me. At times I wonder if I might get Alzheimer’s in the...
The bus driver's miricle.

08/2019 | 7 Comments

Hello, my journey with epilepsy begins in 1963 when I was developed in the womb but I didn't know about it until 30/August/2019. I was born with an...
My seizure journey

08/2019 | 2 Comments

Hey guys, I’m a 17 year old girl and I’ve been suffering from epilepsy since 6th grade. So I was around 11 years old . I had my first seizure take...

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