Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance
We are here to help!
Auras

03/2020 | 6 Comments

Hi there im new to here and was wondering if maybe anyone elts has a similar issue . When I was 47 one dsy I walked into the bathroom and without...
New to epilepsy

03/2020 | 4 Comments

Hi all...I was diagnosed with epilepsy this past October after my second tonic/clonic seizure episode. Both seizures occured at work. How embarrassing...
Do Seizure Types Change

03/2020 | 4 Comments

I have had tonic-clonic grand mal seizures for roughly the last 4-5 years. They appear to be brought on by stress. When my life is the most hectic...
Weird seizures

02/2020 | 3 Comments

Just wanted to share my story. About 11 years ago my husband and I were working outside. Being a Nurse I knew to stay well hydrated and rest. Anyway...
My daughter (6 years old) had a seizure

02/2020 | 2 Comments

Hello all, My daughter had a seizure 4 days after treating ear infection, runny nose for more than a month. She didn't have high body temperature so...
Seizure free for nine years

02/2020 | 2 Comments

I grew up with epilepsy for over 33 years of my life. In 2011, I had a lobectomy on the left side of my brain to remove a non-cancerous tumor. I have...
My Husband

02/2020 | 1 Comments

My husband was diagnosed with epilepsy when he was 8. It was during his parents divorce and the Dr said it was from stress and that he would grow out...
Thinking, Speaking & Memory

02/2020 | 2 Comments

** warning this is a long post mostly rambling** I was diagnosed with Epilepsy about 12 years ago (mostly complex partial seizures from temporal lobe)...
Do your seizure symptoms match these?

02/2020 | 7 Comments

fter having many severe episodes that I will describe below, an EEG showed seizure tendencies. I have now been using Keppra for about 3 months but am...
Does Diastat need to be at school?

01/2020 | 2 Comments

My son is 19 and has CP. He has always had Diastat in his backpack. Recently nurse stated medication needs to be at school. I understand it is school...
Local Photojournalist - Epilepsy Beat

01/2020 | 2 Comments

Hello, My name is Zach Brien. I have lived with juvenile myoclonic epilepsy for roughly 10-and-a-half years. It has certainly changed a lot of aspects...
New to seizures

01/2020 | 3 Comments

Hello Everyone, I'm new here and learning so much on this EF website. I had my first Seizure in Sept. 2019. Being almost 50, it brings a new...
Relationship & Dating

01/2020 | 3 Comments

This is my first time on a message board. I am 23 and live in Wichita, KS. For years, I have blamed epilepsy for all of my shortcomings including...
Recent Episode

01/2020 | 1 Comments

Hi all! New here. I have been diagnosed with epilepsy for about 14 years now (im 35). I initially was seen having grand mals. I was on carbamazepine...
Advice

01/2020 | 2 Comments

I had a partial seizure yesterday, my first for 3 and half years after I was put on Keppra/Leviceteram to stop them. It wasn't a tonic/clonic that I...
My first seizure

01/2020 | 3 Comments

Hello everyone, my name is Dominika. I was diagnosed with epilepsy at the age of 25. I just recently experienced my first seizure ever which was...
Progressive right side paralysis

01/2020 | 2 Comments

Hello, My wife has had epilepsy for 30 years now since she had a brain tumor removed and radiation therapy. After finding out the hard way, we...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe