Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Seizure or epilepsy?

04/2020 | 2 Comments

I am Ravi from India and new to this forum. I had a seizure three months back. I am 27 years old with no previous seizure history and no family...
Empathy: My Sharpest Sword

04/2020 | 1 Comments

Being a design leader in a big tech company comes with great responsibility. Not only to the business but to the people you work with on a daily basis...
Autism and epilepsy

04/2020 | 3 Comments

Hello everyone. I haven’t posted on here in a long time. I have found lots of comfort in the past from this tight knit community so I figured I would...
Quitting my medicine was wrong

04/2020 | 6 Comments

I was diagnosed with epilepsy at 19 years old. I am 33 now. Until one month ago I have been treated with tegretol (carbamazepine). In December I...
Keppra and late period?

04/2020 | 1 Comments

I have a benign tumor which causes me to have seizures and right leg paralysis for like a short while. Anyway I was on carpomazapine for a while until...
Not seizures?

04/2020 | 1 Comments

Hi, I’m new here & I was really hoping for others opinions that know/experience more of what I’m talking about. I’m 38/F & in Feb 2019, I was out to...
Video games and epilepsy

04/2020 | 2 Comments

As I cannot contact my doctor due to the whole Coronavirus at the moment I was wondering if someone can help I have primary generalised epilepsy and I...
New and Confused

04/2020 | 6 Comments

My son had his first seizure a year and a half ago, at age 19, while away at college. He started out with a severe headache that then progressed to...
MORNING SEIZURES & HEAT

04/2020 | 3 Comments

I've been with my husband James since High School. James was diagnosed with Epilepsy when he was 20years old and he is now 27years old. I have...
Myoclonic seizures

04/2020 | 3 Comments

Hi everyone! I'm Marissa, and I'm a 20 year old college student who has been dealing with muscle jerks for the last 7 months. They started in...
Depakote side effects

03/2020 | 6 Comments

Help, im so worried, my 12 year daughter just been diagnose with Petit Mal and she was put on depakote for 22 days so she just tell me she heard a...
Migralepsy?

03/2020 | 2 Comments

I was wondering if anybody else has been struggling with the same thing as I so I decided to post this on a forum. I have had periodic seizures since...
Musicogenic epilepsy

03/2020 | 4 Comments

Hello, i'm 22 years old girl and I'm coming from Slovenia. Last year I was diagnosed with musicogenic epilepsy. I have problems with music 10 years (I...
My husband had a seizure while driving

03/2020 | 14 Comments

I can't sleep! I keep getting flashbacks of what happened yesterday when my husband had a seizure while driving. He was diagnosed with epilepsy, grand...
Absence seizures upon awakening

03/2020 | 3 Comments

Hello, my name is Don, and my 27 year old son has had absence seizures since the 3rd grade. He currently takes Lamictal and Fycompa. His main issues...
strong

03/2020 | 6 Comments

I have Nocturnal Seizures and was seizure free 7 years. A month ago I had my first day time seizure. With all the anxiety and lack of sleep I was to...
certwelder56

03/2020 | 3 Comments

Hi All, I just had my third breakthrough seizure at work. Godbless em they haven’t canned me yet. I’m still looking for the best anti-seizure med...

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