Community Forum Archive

School and Epilepsy

I've been reading on other posts asking about what it's like to have Epilepsy at school. So, here's my comment to all those who are dealing with Ep. When I was in 7th grade (age 13), I was having seizures, but didn't know it. At that time, I wasn't aware about seizures. I was made fun of by classmates. I would recall seeing flashing lights and feel my heart accelerating 'coz the fear kicks in on me. It's just a reflex. Anyway, one classmate would make fun of me by rolling his eyes up and pretend that he was seizing. Everyone would laugh. In highschool, my friends/classmates were a little more understanding. They would get scared when I get them, but it's understandable. At my Junior year of highschool, I was told by my doctor that I'm having seizures and was given Dilantin. By the way, I had to see many doctors to find out what's wrong with me. A lot of them were stumped until I found a doctor who was able to diagnose me correctly. In college, the added stress of school, began to affect my seizures. I was doing a lot of all nighters with my studies and reports that needed to be handed in by morning for certain classes. My doctor was telling me that too much stress isn't good for me and that I needed to cut back on my classes. So, instead of taking a full load of classes, I went to taking 2 classes. It decreased the seizure activity, but I wound up graduating much later than I would have liked. Well, at least I was able to get my diploma. It was a great accomplishment for me. So, my advice, to all the students dealing with Ep at school, is to not allow negative comments from anyone at school affect you. Just remember that these people are not educated in Ep. So, just turn a deaf ear on them and do what is more important......your schooling. Who knows in the future you may wind up having a way better paying job than them 'coz you were more studious than they were. I tell you education really pays off in the long run.


Re: School and Epilepsy

Submitted by MindyRoy on Thu, 2007-07-19 - 13:23
Thank you for your email. I have a 12yr. At first the kids were kind, but once she started having them daily, a few kids would make fun of her. Well...that is what she said. But I noticed that most of the kids really care for her. I am worried about school starting back up. She will be in 6th grade so it is not a big change, but she seems to have more szs during school. We will just have to wait and see. Take care!

Re: School and Epilepsy

Submitted by Sophs64833 on Sat, 2007-08-11 - 14:03
Thanks for the advice. it's really encouraging for me and I'm sure it's encouraging for others as well. It really shows that I too might be able to accomplish something in life. Ya, other non- understanding people can be so cruel. I've also been through that. Hope you're doing well. God bless. ~Sophs

Re: Re: School and Epilepsy

Submitted by seizuregirl on Sun, 2007-08-12 - 03:03
You're welcome :-) Seizuregirl "Life is what you make of it"

Re: Re: Re: School and Epilepsy

Submitted by Missyat on Sun, 2007-08-12 - 23:07
My son is going into the 4th grade this year. He is NOW at a wonderful school, but the schools before were horrible. The kids found out if they yell in his ear you could make his leg jerk out... funny ha ha, his nasty aide did NOTHING! The principal at that first school denied my son had seizures and all but said that I was munchausen by proxy. Then laid on me that I was putting too much on the school... ewwww nasty people. The school he is going to now is wonderful, aide is very attentive, recognized his seizures right away, and knew my son well enough to question seizures on bad days... she even called me during the day to ask questions... her first question was "how can I help your son?" Kids and people can be cruel... thank you Seizuregirl... for showing all of us that we can get through this and still have a smile on our faces.

Re: Re: Re: Re: School and Epilepsy

Submitted by seizuregirl on Mon, 2007-08-13 - 04:12
You're welcome, missyat. School can be quite controversial as a seizure patient. The teachers, the students, etc. can really do a number on people like us. I'm glad that you found a school that actually cares for your child. You are blessed indeed. Seizuregirl "Life is what you make of it"

Re: Re: Re: Re: Re: School and Epilepsy

Submitted by HilaryWeinberg on Sun, 2007-08-19 - 18:50
Yep I know wut u all mean. I hated going to high school with my seizures. I was picked on but I did blow it off. it sucks but kids just dont know wut they are. it took me a while to realize that tho.

Re: Re: Re: Re: Re: Re: School and Epilepsy

Submitted by seizuregirl on Mon, 2007-08-20 - 06:48
Hi Hilary. Kids at young ages are foreign to these kinds of issues, but you know what's really mind boggling for me? The adults are as dense as the kids. My goodness...I had to undergo a lot of stigma with adults who have no undertanding what I'm going through, yet they can make opinions as if they're such great experts in the disability. People who have no understanding of what ep patients goes through yearly with this disability should not make our problems sound as if it's no big deal. Don't you just hate that? It's ok with me if kids make comments because I know that they're not equipped to truly understand it yet, but adults???? Aye....all I can say is that ignorant people should educate themselves 'coz it will truly save us ep patients a lot of grief. Don't u think? Seizuregirl "Life is what you make of it"

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