Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

67 year old sister not eating

08/2018 | 1 Comments

My mentally handicapped Sister had 3 back to back to back seizures in May about 3 mins each and 2-3 mins in between. Since then her appetite has gone...
Newly diagnosed - bedwetting

08/2018 | 5 Comments

My husband has recently been diagnosed with temporal lobe epilepsy. He has had focal seizures since he was a teenager but his parents never took him...
Seminar on Epilepsy and College!

08/2018 | 0 Comments

Seminar in Nashville on Sept. 15 for students on doing college with epilepsy! Details/Register online: studentswithepilepsy.com *Parents and...
NYC kids with focal epilepsy

07/2018 | 3 Comments

I have two children, ages 6 and 8, with focal epilepsy. My son age 8 is looking for kids his age to talk to about his condition. We live on the upper...
Caretaker

07/2018 | 4 Comments

I live in TN and care for my 11 month old grandson with epilepsy. (chromosome #15 disorder) His parents have to work so I take care of him from 7am...
CBD oil

07/2018 | 3 Comments

Hi everyone! I have a 5 year old girl who has been on Keppra and Depakote for about a year for her Absence seizures. It was all such a shock to me...
12 weeks old diagnosed...

07/2018 | 4 Comments

My daughter got her first seizures a little over a week ago. She was twitching sometimes on one side of her body, then both, and her eyes always kind...
7 year-old daughter recently diagnosed

07/2018 | 10 Comments

My 7-year-old daughter was recently diagnosed with epilepsy. She had her first seizure on June 8 about 30 minutes after she woke up. It was a tonic...
Stubborn Teenager

07/2018 | 4 Comments

Help! I have a 16 year-old daughter who was diagnosed with epilepsy at the age of 9. Her epilepsy is well-controlled by medication, which she is...
Medical Group Homes

06/2018 | 0 Comments

Hi. I have never been on a forum before. This site was recommended to me by my daughters Neurologist. My husband and I are in our late 60's. Our...
My daughter has grey matter heterotopia

06/2018 | 0 Comments

She has nodules 20 or so from her occipital horn to her temporal lobes on both sides. She has seizures and is on two different seizure medications...
Toddler seizure: Scared. I’m epileptic.

06/2018 | 1 Comments

Hi everyone. This weekend my three year old son had what could only be seen as a seizure in my eyes. He had just fallen asleep when I heard crying in...
Seizures increasing in 5 year old

05/2018 | 1 Comments

Hello everyone. My wife and I have a 5 and half year old son who was a 26 week premie. Our son has a VP shunt and unfortunately contracted bacterial...
BRE and sleep monitors

05/2018 | 1 Comments

My 10-year-old son has just been diagnosed with Benign Rolandic Epilepsy. The doctor has put him on a low dose of Keppra and Vitamin B6 at night...

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