Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

ATTENTION Other Mothers

03/2019 | 1 Comments

We need input from mothers of children who have children with epilepsy. My daughter has had epilepsy since she was a baby. Now she is 26. We have a...
Refusing medicine increase

03/2019 | 3 Comments

My 12 year old son was diagnosed with focal onset aware in December. They put him on Keppra and he didn't handle that well. He was switched to...
Toddler, Keppra, Sleeping...help!

03/2019 | 4 Comments

My 16 month old is on 100 mg of Keppra twice a day plus Vitamin B6 once a day. He started on this right after he turned one year old. He had seizures...
Leaving Husband with Epilepsy Alone?

03/2019 | 5 Comments

Hi! This is my first post, and I'm new to learning about Epilepsy (although have done a lot of research). My husband is 31 and just started having...
New to epilepsy: 13yo daughter

02/2019 | 2 Comments

Hi All, Our 13yo daughter just had her first seizures a couple of days ago. She was admitted to the hospital but couldn't determine what type it was...
New onset seizures

02/2019 | 3 Comments

Hello, My daughter is 9 years old and has ADHD and mild autism. Last week her school called me and said she wasn't acting like herself, was disruptive...
First Seizure

02/2019 | 5 Comments

Hello, My son is 16, he had first seizure at school about 3 1/2 weeks ago, he was in cafeteria sitting at table watching his phone and fell to the...
Living Independent Concerns

01/2019 | 1 Comments

Hello, I'm new this site but not new to seizures. I grew up with them for more than half my life now. My question comes from the fact that my mom has...
Depakote

01/2019 | 0 Comments

My seven year old has been on depakote for 2 weeks now and I’m not sure I’m liking some of the side effects. If you’ve had a child what were some of...
worried mom

01/2019 | 4 Comments

Hello, I'm new to this site. But desperately need some advice from someone who understands what in going through. My 14 year old son was just...
Possible new seizure activity?

01/2019 | 1 Comments

My daughter was diagnosed with generalized seizure 3 years ago. She had a few grand mal ones. One year ago we were in the car in the driveway. I...
New Seizure Activity? Need Help!

01/2019 | 0 Comments

Hello, I am new to this group. I have an 18 year old son who started have tonic clonic seizures when he was 15. He only had them once every couple of...
New onset

01/2019 | 1 Comments

My 5 year old son was diagnosed a day ago. He’s only had one known seizure and it lasted 15 minutes. My question is this: Since the seizure he’s...
New diagnosis- bcects/bre

01/2019 | 6 Comments

First timer - 8 yr old daughter with BCECTS (aka BRE - benign rolandic). Just diagnosed and we have some practical parenting questions. Not sure where...
5 weeks old baby with seizures

12/2018 | 4 Comments

Hi my 2 months old baby was diagnosed with epilepsy at 5 weeks. She is being in Keppra since then and she is doing fine 0.8ml twice a day she weight 9...
1 year old with new diagnosis

12/2018 | 0 Comments

Hello! We adopted our daughter at birth, she is now 13 months old. The day after her 1st birthday party she had what we now know was a partial seizure...

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