Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Zonisamide

10/2019 | 3 Comments

My 7 year old grandson was just diagnosed with general epilepsy following a three-night EEG. He had been taking Keppra a couple of months ago but had...
Awaiting diagnosis

09/2019 | 2 Comments

So I have a 4 year daughter and for past 6 months we noticed she was having a staring moments where she couldn’t be snapped out of even though they...
Toddler daughter

08/2019 | 2 Comments

Our two-year-old had 5 febrile seizures (tonic clonic) over the course of 4 months. Normal EEG and started on Keppra. Seizure free for three months...
Panayiotopoulos syndrom

07/2019 | 0 Comments

Hi- does anyone have a child with this or any experiences they can share with me?
9 month baby seizing?

07/2019 | 2 Comments

My 9 month old had a tonic clonic seizure when she was 3 months. She had another one when she was 8 months. She also does a sort of shiver on and off...
Looking for insight

07/2019 | 2 Comments

My son has seizures. Hes had 2 grandmals and lots of absence. He is on depakote and keppra. We are starting to wean him off keppra. But over the last...
DC Epilepsy Meet-up

07/2019 | 1 Comments

I hope this does not come off as inappropriate, but I am actually working on behalf of a consulting firm that wants to meet with epilepsy patients or...
laser ablation

07/2019 | 0 Comments

anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any...
My Journey Taking care of my son

07/2019 | 2 Comments

My Son was diagnose with seizure when he was about 7 months old. But he had it since he was about 3 days old, but we did not know. Here in Jamaica my...
Infant with Epilepsy

05/2019 | 1 Comments

My son started having seizures in March at 7 months old. We went to the ER where they took blood and completed a CAT scan - both came back normal...
Son is Graduating HS!

05/2019 | 1 Comments

Hi all, my son was diagnosed 9yrs ago and been well controlled for about 5yrs. I have been a mess! I know this is all normal emotions of your child...
22 month old diagnosis help

05/2019 | 6 Comments

My 22 month old had a tonic clinic seizure and was hospitalized for 2 days. He tested positive for the cold virus so neuro felt the seizure was a...
New Diagnosis for my 6 year old son

04/2019 | 4 Comments

My 6 year old son was just diagnosed with epilepsy. He had a tonic clonic seizure 2.5 years ago. We never saw another seizure until about 2 months ago...
Anger and Aggression after a Seizure

04/2019 | 6 Comments

Hi! I'm new to this and I usually don't go onto forums to share personal things, but I'm at my wit's end. My husband is 32 and never had seizures...
CBD oil to treat seizures?

04/2019 | 1 Comments

Does anyone have any recommendations for CBD oil with no THC to treat seizures? My partner is pregnant and has had to go off all their seizure meds...
504 Plan Absence Epilepsy

03/2019 | 1 Comments

Hello, We are working w/ my daughters school on a 504 plan for her absence seizures. Pretty much her teacher has never notice them at school (my...

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