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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Family with brother/son with 1st seizure.

Tue, 05/26/2020 - 03:33
Hello my brother just had his first seizure today! They discharged him from the hospital and as a family, we are worried this may be too soon. We also want to know if there are any support groups out there. Thank you for your help


Hi, Thank you for posting.

Submitted by Anonymous on Tue, 2020-05-26 - 09:10
Hi, Thank you for posting. Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: . It’s important that your brother is continuing to follow-up with his doctor’s and that you all express your concerns about your brother being discharged too early, with his healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, , or contact your local Epilepsy Foundation:, to find support groups, events, and programs in your community. Posting in our forums like you’ve done or talking with others via our online chat room are also great resources for finding support as well.

Thank you for reaching out!

Submitted by Cshane22 on Wed, 2020-05-27 - 04:31
Thank you for reaching out! We will definitely be  looking into these resources 

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