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Nightmares or actual seizures?

Hi, my name is Violeta and I`m 18 years old. Today it`s been a year since I was diagnosed with epilepsy, almost two since I had my first seizure, and a year and a half since I`ve been having seizure nightmares, or my own freddy krugers as I call them.

When I woke from the first freddy I thought I`d actually had a real seizure, but later convinced my self that it couldn`t have been as it hadn`t felt as the first real one which had been whitnessed by my friends (as a difference to this nightmare, which no one had seen me have). In the real seizure I`d lost conciosness and when I became concious again I wouldn`t remember what had happened, it sort of felt like being dizzy or a little drunk.

Freddys always take place less than an hour after I go to bed. I usually fall asleep and the nightmare sets in the exsact place where I am in real life (meaning that if I go to bed in my room, that`s where the nightmare is set, if I go to bed in a friend`s house the nightmare will be set in that very place), and I see things happen from the exsact position at which I layed down. It`s always as if having my eyes open I feel myself shaking from head to toes, and I see the whole bedroom shaking as well. I always panic when I have them, at first I didn`t realize that I was dreaming so I would try to call for help, or even try to make my self fall off my bed so I`d make a noise and my parents would hear me. But of course I never managed to do it. I told my neuro about this and he said they were only nightmares and I had nothing to worry about, but honestly, it feels so real I`m just not so sure about what he said. Plus I read somewhere that sleeping seizures, or nocturnals as they call them often come in the shape of dreams. When I wake from freddy`s I know exsactly where I am, I don`t feel lost at all, I`ve never wet my bet (I know it often happens with seizures) and never had toungue bitting. I am medicated now, and never have suffered from seizures since I`ve been. It`s just that lately, this nightmares that had gone away a while ago have come back, as I am under a lot of stress. I know stress might be a trigger for seizures.

Anyway the question is, has anyone had any experience with nocturnals without any tongue bittin, or bed weting, or not even feeling lost after having them? Now that I`m used to them when have them I just tell my self to calm down and try to wake up, but sometimes when I do, the shaking gets worse and it feels so bad, so I just choose waiting. It is so scary, and don`t even know whether I`m just dreaming or really seizing.

I hope some one will have an answer to this.. or at least tell me about your own stories with nocturals..

By the way, sorry for any spelling or grammar mistakes, I never should have dropped out of my english classes. 

 

Comments

Re: Nightmares or actual seizures?

Submitted by Newyorkcita on Sun, 2009-11-29 - 20:24
Hi, You commented on my thread about the dream I have of getting shot and it leads to shaking. I always stop shaking by the time I wake up, but I wake up in that same position with my neck stuck to my shoulder. The dreams really disturbs me. Now that you mentioned it, I do have those dreams where I'm in the same place where I fell asleep. It's weird because I forget them really soon after I wake up but then I have "memories" or deja vu. My husband has never seen me have a seizure and the last time I had the dream I asked him if I was shaking and he said no. But he is a very heavy sleeper. I used to have dream seizures when I was a child and I would wake from them, but still see worms or bugs crawling all over me. I would jump out of my bed running. I've had some dreams like this as an adult that spill over into reality, but I have not been diagnosed with seizures as an adult.

Re: Nightmares or actual seizures?

Submitted by cvargas on Mon, 2009-11-30 - 02:45
Hi violeta, well for me I used to have my seizures (tonic clonic) in my sleep and the only reason I know this is cuz I would wake up completely out of it and I would bite my tongue I had no dreams at this time. Now I do seem to dream as if Im having auras when Im waking up like dreams but Im not sure if they are true complex partial sz. have you told your doctor about this? he may be able to tell you if they are sz or not there are a lot of us that have the night E. I hope this helps a little. `Christina Vargas

Re: Nightmares or actual seizures?

Submitted by guinness on Fri, 2011-08-12 - 00:39
Hi Violetta my name is Chris I had my first seizure when I was 9 years old and have had more since always at night in my sleep..am older now and fingers crossed havnt had any in past 10 years but still take eplim, am answering as my earliest memories of being asleep half awake since couldnt move or shout out feeling terrified and have had these more than actual seizures but been told by friends doctors and family have just had bad dream..I know this is more than bad dream and understand u experience talk t me more chris.lawley18@btinternet.com  ok

Re: Nightmares or actual seizures?

Submitted by juperee on Sat, 2010-02-13 - 03:00

You've really nailed the description, Violeta! I have the same thing, and I've always wondered if it's a nightmare or a seizure. The wierdest part is, like you describe, the setting is accurate: if I'm "dreaming" i'm in bed on my left side, I really am. If I'm "dreaming" I'm on the couch in the living room, I really am there. My Freddys even incorporate real surroundings such as sounds of sirens going off, or the cat meowing.

And yet, they're dreamlike in the sense that they're not quite real. They sometimes incorporate real external stimuli in a fictional manner, just like a half-waking dream. 

You mention the "getting shot" sensation. I frequently have the electrocution sensation. I will dream I am being electrocuted in some scenario, then half realize "no, I'm in bed having a seizure", and then finally I fully wake up. At that point, I feel sort of sore, like my muscles were tensed up, but not like a really bad grand mal. However, one time I did crack a tooth that subsequently had to be pulled (i've never even had a cavity, so my teeth are pretty good generally).

To this day, I can't tell if I am having nightmares about seizures because I dread having a real one, or if I'm having nocturnal seizures??? Your description is spot-on though. I hope more people weigh in on this topic.

You've really nailed the description, Violeta! I have the same thing, and I've always wondered if it's a nightmare or a seizure. The wierdest part is, like you describe, the setting is accurate: if I'm "dreaming" i'm in bed on my left side, I really am. If I'm "dreaming" I'm on the couch in the living room, I really am there. My Freddys even incorporate real surroundings such as sounds of sirens going off, or the cat meowing.

And yet, they're dreamlike in the sense that they're not quite real. They sometimes incorporate real external stimuli in a fictional manner, just like a half-waking dream. 

You mention the "getting shot" sensation. I frequently have the electrocution sensation. I will dream I am being electrocuted in some scenario, then half realize "no, I'm in bed having a seizure", and then finally I fully wake up. At that point, I feel sort of sore, like my muscles were tensed up, but not like a really bad grand mal. However, one time I did crack a tooth that subsequently had to be pulled (i've never even had a cavity, so my teeth are pretty good generally).

To this day, I can't tell if I am having nightmares about seizures because I dread having a real one, or if I'm having nocturnal seizures??? Your description is spot-on though. I hope more people weigh in on this topic.

I have had similar dream

Submitted by eg_asc@hotmail.com on Sat, 2015-03-14 - 01:20
I have had similar dream/seizures. i ended up being diagnosed with primary epilepsy. I do hope the neurologist sees something different in three weeks from now. So I can go back to driving. I can't depend on other people to get me to and from work.

I had this lastnight. I

Submitted by Kyle2017 on Mon, 2017-09-18 - 18:08
I had this lastnight. I dreamt that i was having a seizure and was fitting and when i woke up i was spazzing still and unable to move and my jaw felt like it was twisted i couldnt speak. I think its because I gave up smoking weed i used to have peti mal abcent seizures at 15 but started smoking weed everyday as a teenager and it stopped the abcent seizures i would still go into a staring fit but be able to shake my head to come out of it fully concious. i gave up weed im now one month and 5 days clear but my dreams started coming back stronger then before. I have also experienced sleep like paralysis and feel like i am trapped in my dreams but fully concious. Im having nightmares and real coulourfull scary dreams every night since quitting weed. Im 30 now so since 15 i havent had any more. Back then i used to walk with friends in town go abcent and next thing i know i would be feeling weird and my friends have disapeared. They also said i looked like hulk hogan shaking my arms in a fit. As i said luckily that stopped when i smoked weed but now i have gave up i am scared they may come back. Im scared to sleep at night incase i fit again like lastnight. Was so scary. I defanatly belive there is a concetion with sleep parylaiss and and epilepsy and smoking weed. Im Just glad im not the only one expereiencing the fits in sleep and waking up fitting. And the trapped in dreams feeling. 

Hi Gail. I am currently

Submitted by Celnik30 on Fri, 2017-10-13 - 17:40
Hi Gail. I am currently having ECT for depression. Your post nailed it for me. I SWEAR that as soon as they put me under,the nightmare begins. I also have some sort of supernatural THING that is trying to come and attack me. It is HORRIBLE. The anesthetists say that they have never heard of this, but I swear that it is very vivid and very real. It has also caused major anxiety for me before treatments where I am literally vibrating out of fear. I'm wondering if you have heard of anyone else experiencing anything like this?Celena

I have seizure nightmares a

Submitted by stacy.thomas81@yahoo.com on Sat, 2017-11-04 - 12:51
I have seizure nightmares a lot and the real scary thing is every time I have them it's like Im dead looking down at myself seeing myself have this super bad seizure. I once told my mother "Because of the way I see myself during these seizure dreams I have a feeling if I should ever die it will be because of my seizures, I have a feeling my seizures are gonna kill me some day."

Hi! I have just had this

Submitted by abbey97 on Mon, 2018-03-26 - 10:25
Hi! I have just had this happen to me too! Two sleeps in a row, the first one i thought i heard something in my room but i couldnt move and then my body started convulsing until i told myself to wake up . I dont know if it was convulsing for real or just dreamt it though because it felt so real. Then the next sleep I had I remember becoming aware that I was dreaming and then a part of my dream a TV asked if I wanted to enter a portal and I told myself yes lets enter (I'm a curious person) and then I started to go through but I started convulsing again, this time I let it happen for a little longer before I thought I was going to shake myself out of bed and do damage so i forced myself awake again. However I think I must not have been shaking for real because I did research and apparently the body goes into paralylsis when you are at REM sleep (when you dream)> but it just felt so real so I dont know. Would love to get in touch with you to see how everything is going for you!.

Hi! I have just had this

Submitted by abbey97 on Mon, 2018-03-26 - 10:25
Hi! I have just had this happen to me too! Two sleeps in a row, the first one i thought i heard something in my room but i couldnt move and then my body started convulsing until i told myself to wake up . I dont know if it was convulsing for real or just dreamt it though because it felt so real. Then the next sleep I had I remember becoming aware that I was dreaming and then a part of my dream a TV asked if I wanted to enter a portal and I told myself yes lets enter (I'm a curious person) and then I started to go through but I started convulsing again, this time I let it happen for a little longer before I thought I was going to shake myself out of bed and do damage so i forced myself awake again. However I think I must not have been shaking for real because I did research and apparently the body goes into paralylsis when you are at REM sleep (when you dream)> but it just felt so real so I dont know. Would love to get in touch with you to see how everything is going for you!.

Hi! I have just had this

Submitted by abbey97 on Mon, 2018-03-26 - 10:25
Hi! I have just had this happen to me too! Two sleeps in a row, the first one i thought i heard something in my room but i couldnt move and then my body started convulsing until i told myself to wake up . I dont know if it was convulsing for real or just dreamt it though because it felt so real. Then the next sleep I had I remember becoming aware that I was dreaming and then a part of my dream a TV asked if I wanted to enter a portal and I told myself yes lets enter (I'm a curious person) and then I started to go through but I started convulsing again, this time I let it happen for a little longer before I thought I was going to shake myself out of bed and do damage so i forced myself awake again. However I think I must not have been shaking for real because I did research and apparently the body goes into paralylsis when you are at REM sleep (when you dream)> but it just felt so real so I dont know. Would love to get in touch with you to see how everything is going for you!.

Let me just start by saying I

Submitted by Earlized on Sat, 2018-08-18 - 08:09
Let me just start by saying I have had sleep paralysis but I’m not sure what this was or the cause but it’s weird because I saw Freddy Krueger too but i heard very loud wind and every time the wind picked up my body started tensing up and shaking  and I tried to speak but I couldn’t I was just shaking but it stopped after 30 seconds and I was completely aware through the whole thing that’s how I can remember seeing Freddy Krueger but it was moving it was just a still image I’ve never felt that before I’m not sure what it was or what to do 

Wasn’t moving it was just a

Submitted by Earlized on Sat, 2018-08-18 - 08:16
Wasn’t moving it was just a still image or silhouette 

Let me just start by saying I

Submitted by Earlized on Sat, 2018-08-18 - 08:16
Let me just start by saying I have had sleep paralysis but I’m not sure what this was or the cause but it’s weird because I saw Freddy Krueger too but i heard very loud wind and every time the wind picked up my body started tensing up and shaking  and I tried to speak but I couldn’t I was just shaking but it stopped after 30 seconds and I was completely aware through the whole thing that’s how I can remember seeing Freddy Krueger but it was moving it was just a still image I’ve never felt that before I’m not sure what it was or what to do 

I sustained severe nerve

Submitted by Omen6 on Fri, 2018-11-02 - 15:06
I sustained severe nerve damage a few years past and have seizures as a result of it, I have really vivid dreams of me having them and will wake feeling like I had really had a seizure. So I am trying to figure out if in my dream seizure is it really my mind telling me I'm having a seizure? This morning it happened again and I woke up after I had one in my dream to have one in real life I want to figure out the connection if there is any

I have a very experience with

Submitted by DarianSox on Thu, 2019-07-25 - 02:19
I have a very experience with these recurring "Nightmares" I right this in quotes because I often have normal nightmares (scary dreams) and also lucid dreams (I know I'm dreaming and can control aspects of dream) but these nightmares always feel the same and have aspects of both. First of it is absolutely hell and these "nightmares" are easily the worst feeling/experience I can possibly imagine. I have JME and though I rarely have grand mals, I often struggle with muscle spasm and seizures during my sleep that terrify the people around me. I have had seizures during sleep without experiencing the "nightmare" and I often have these nightmares without a seizure occurring so it is often hard for me to figure out exactly what happened. These nightmares feel like Im falling in every possible direction (up, down, spinning all at the same time) this can feel nauseating and terrifying, this feeling is often coupled with the sounds of thousands of skipping demonic noises layered over each other being played forward and backwards. During the whole "nightmare" I often feel like Im screaming at the top of my lungs for the entire duration of the dream. Many nights I will wake up from the dreams and know I am in my bed but am completely paralyzed, only to instantly fall back into the dream. this cycle will loop for what feels like an eternity, and I often think Ive died is the "nightmare" is lucid enough, which it often is. Hope This Helps XD XD

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