Community Forum Archive

New onset JME

My 15 y.o. daughter has been having twitching for about a year when she didn't get enough sleep. This morning she had a full blown seizure in the car as I was driving her to school activity she was excited about attending. She was up late last night and didn't have much sleep.  She was being followed by a neurologist and a work up was in process for JME.  She had an MRI yesterday which was negative.

She was started on Keppra today and I am afraid to leave her side for fear she will have another seizure. Will I get over this.  What are the chances for additional seizures?  She is scheduled for a sleep deprived EEG in two weeks. I afraid she will have a seizure if she is sleep deprived. 

Anyone have insight for me? 

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