Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: My Epilepsy Diary

PRINTING MY DIARY

03/2013 | 1 Comments

hi, I have the latest iPHONE app and I have been using it since it came out. I am all synced up. I obviously am logged in to the website. But I need...
Work & epilepsy

02/2013 | 1 Comments

I have been working for McDonalds for three years, In all that time my epiliepsy has been up & dawn... Fanliy the penny dropped Monday. I had a full...
Missing data

02/2013 | 3 Comments

Well I went and downloaded the iPad app for this diary, as that's where I will use it, but information about the tablets I've taken seems to vanish...
strange behaviour

02/2013 | 3 Comments

I have suffered from epilepsy since i was in my late teens Im now mid 40's Usually quite well cont rolled Last we ekend... had been a normal weekend...
About me

01/2013 | 0 Comments

I have had epilepsy since I was 2years old, I first found out I had it after I had a photo taken with my grandma! I am now 18 nearly 19 and still don...
My Story

12/2012 | 5 Comments

I just turned 21 and I was diagnosed with a seizure disorder a little under a week ago. My fiance was there with me when i found out and has supported...
HELP PLEASE FOR MY 9 YEAR OLD SON!

11/2012 | 0 Comments

My son Alex began small twitches in his left hand & giggled for a few seconds. After a week it grew into 10-15 second seizures- his left hand up in...
Post seizure symptoms normal?

11/2012 | 0 Comments

Hi there, I am new to this forum. I would be very grateful to hear other people's opinions and experiences as I am not that knowledgeable about...
App updates please

10/2012 | 0 Comments

1. Is it possible to update the app where you have a month view as well as weekly? When I'm at the doctors and thy ask when I had a seizure last I...
Torn chest muscle

08/2012 | 1 Comments

On Thursday my family brought me to the ER thinking my appendix was about to rupture. Good news is that it was swollen lymph nodes from a uti that I...
Changing

08/2012 | 4 Comments

Hi ya guys, Its been time, since being on here. Anyway I have had a seizure at work last week it was more like an aura.. I was secord as i am always...
Am i having seizures? If so, what kind?

07/2012 | 5 Comments

Hi! :) I have been having what I call "episodes" since I was little. I never told anybody about them until I got in high school, and then finally went...
How Do You Cope?

05/2012 | 11 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common...
How Do You Cope?

05/2012 | 21 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common...
time line of sz ativity

05/2012 | 1 Comments

I'm in a study drug trial. It will be more helpful for me to have time of sz listed in military time. I will also like a way to enter future appts...
MyEpilepsy Diary

04/2012 | 0 Comments

Can the My Epilepsy Diary be improved to eliminate the "click" sounds on the iPhone app? I find that I need to enter information, at times, when I am...
My epilepsy diary

04/2012 | 0 Comments

I think a BIG help that my epilepsy diary could do for epileptics and doctors to track seizure frequency is bring Able to email or send the time...
Visualizing Epilepsy - NYU SLOAN FILM

04/2012 | 0 Comments

Hi my name is Addison Mehr I am a filmmaker studying at NYU and am working on a film for the prestigious Sloan Grant along with a science advisor from...
getting dup reminders

03/2012 | 0 Comments

Hi there...Not new to epilepsy, but new to smartphones and this diary app. I set up a reminder, but for some reason get two every time it sends. any...

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