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Sat, 04/11/2020 - 20:08
Looking for some feedback... I am 39 years old this week, I have been on Depakote 500mg ER twice a days for years. I had my first seizure back when I was about 9 years old. The first medication I was put on was lamictal, I did not respond well to it. After some time I was switched to Depakote. On two occasions an attempt was made to wean off the meds and I seized around the age of 17 and 24. I just accepted taking the Depakote and never thought about it. This past year my liver functions have come back high. I have agreed to try to take Keppra as per the recommendation of the doctor that cares for me I am scared to death that I will seize again with changing medicines. I can not afford to lose my drivers license as it’s a requirement for my job. I also can’t afford to destroy my liver. I looking for feedback.


Hi,Thank you for posting, it

Submitted by Anonymous on Mon, 2020-04-13 - 09:03
Hi,Thank you for posting, it sounds like you’ve been through a lot. We understand your concerns regarding starting a new medication and the impact this may have on your seizure control.  Treatment and how the body may react to certain medications varies for each individual. It's important that you’re continuing to express your concerns with your healthcare team or if you notice any seizure frequency/types, moods, behaviors, symptoms or side effects, to help determine what individual treatment plan may be best for you. You may want to consider keeping a journal or a diary to document how you’re feeling and to help you identify potential triggers & symptoms. This can help you and your healthcare team detect possible patterns, allowing you to modify your behavior and lifestyle, as appropriate and if determine if additional changes need to be made to your individual treatment plan.  My Seizure Diary can be used to organize your health issues, track seizures, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. . Many clinics and offices are now offering telemedicine options for non-emergencies, or routine check-in appointments. Ask your doctor if you can schedule a time to talk via phone/ other telemedicine resources you can utilize to discuss this further, or if they can make any additionalrecommendations. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000,  , or contact your local Epilepsy Foundation:

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