Hi, I am 23 years old and I have had epilepsy for 11 years and am on 200mg Lamictal a day. I used to have seizures where I would pass out but now I would normally have seizures where I feel sick, my vision would be distorted sometimes, my lips would go white, my hands and feet would shake (my head would shake the odd time).
Lately, my seizures seem to changing, I have had less warning symptoms and those symptoms are different now - I would just have tingling on the back left side of my head and left thigh. I would still feel the usual confusion and disorientation, and fatigue.
The past few weeks, I have had recurring severe dizzy spells. I feel like I’m on a boat.
Today, I was taking a nice bath. I was about to wash my hair just as this dizzy spell came on, it’s the worst one I’ve had. First, I felt like I was spinning round on a computer chair then I had the severe feeling of being on a rocking boat in rough seas. I shouted to my dad asking if I should wait until my mum gets home so she can wash my hair as I feel dizzy and he said yes and asked if I would be ok. I decided to try and get out of the bath (was scared in case I would faint or take a seizure in the bath) so I got out. Was drying myself and all of a sudden the dizziness got was worse, my legs were shaking worse than ever, I could barely balance myself. I tried straightening my core/diaphragm but I couldn’t. Afterwards, I have been feeling very fatigued, confused and disorientated as I would after a seizure. My legs are also very sore from shaking so much. That is just a brief description.
My neurology appointment was meant to be scheduled for Tuesday (7th April) but was cancelled due to Covid-19. As well as my telephone consultation.
Here are my questions:
Are my seizures changing?
Has anybody with epilepsy ever had this before and have their seizures ever changed?
If these dizzy spells are not part of my epilepsy then what could they be?