Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi,Thank you for posting. It
Submitted by Anonymous on Mon, 2019-11-25 - 08:37
Hi,Thank you for posting. It’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support,guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns Treatment and how your body may react to certain medications varies for each individual. To learn more about the medications you’re taking and about seizure medication side effects,please visit: : https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It’s important that you're continuing to follow-up with your healthcare team to express your concerns and if you continue to experience any potential changes in side effects, increase feelings of depression, changes in seizure types/frequency, symptoms &behaviors to determine what individual treatment plan is best for you. It is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health Men living with epilepsy may also experience health concerns that are unique to their gender. Learn about some of the epilepsy related health issues men should be aware of and respond to here: https://www.epilepsy.com/article/2018/6/june-men’s-health-month https://www.epilepsy.com/learn/special-populations/men-and-epilepsyManaging these issues with your epilepsy team can help improve seizure control and your quality of life. For additional information and resources regarding managing your epilepsy, please visit: https://www.epilepsy.com/learn/managing-your-epilepsy