Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Medication Issues

Trouble in the bedroom

11/2019 | 2 Comments

Hi this is a bit embarrassing topic but I’ve had seizures for many years now finally have it under control with medication but I’ve found that I’m...
Depakote - Supply Issue

11/2019 | 3 Comments

My pharmacy is always having issues with getting supply of 500gm Depakote pill. This has been going on for about a year now. CVS keeps saying the...
Blurred Vision / Hallucinations

11/2019 | 2 Comments

Good morning all, Im a 26 year old male from Ireland, I have had epilepsy since February 2017 and I am still quite unstable in regards of medication...
Zonegran Nightmare/Coping

11/2019 | 3 Comments

hi I’ve had seizures since I was 13, currently 21. I probably have 5 seizures a month( Grand mals as well as 5 or 6 focal seizures) No cause as to why...
accidentally overdose no problem

10/2019 | 2 Comments

I been controlled for a long time. Last night I took my evening medication and went to been I woke up a little at midnight and ask my husband what day...
Zonisamide (Zoneg2an)

10/2019 | 4 Comments

After my recent partial seizure, my doctor asked me to add Zonegran 100mg 1st week, 200 mg 2nd week, 300 mg 3rd week. I am currently taking 400 mg...
Hives and Medications

10/2019 | 1 Comments

I’ll try to make this short. I have a minor case of epilepsy with partial nocturnal seizures, if I miss a couple doses of meds. When put on Lamictal...
Keppra and hand tremors

10/2019 | 3 Comments

Hi everyone, I was diagnosed with epilepsy one year ago after 2 grande mal seizures, one month apart. They started me on Keppra, which i still take at...
Keppra- Is this normal?

10/2019 | 4 Comments

Hi, I’m new to this and havent been diagnosed with epillepsy. I had the first seizure of my life about a month and a half ago. No determining cause...
Medication changes

10/2019 | 2 Comments

Hello, I am the mom of a 5 year old with partial onset seizures. He was diagnosed a little over a year ago. We have been seizure free for the last 6...
Medicaid Shuffling Generics

10/2019 | 2 Comments

Has anyone experienced bad side effects when their pharmacy switches generic brands? This includes the pharmacy and doctor.
Frisium experience

10/2019 | 1 Comments

Hey all Anyone have experience with this drug? Did it assist with decreasing seizures, what were the side effects etc? Cheers PC
Medication side effects

10/2019 | 1 Comments

Hi guys, I'm 27 and have had 6 grand mal seizure since 2012 and suffer from constant focal seizure from about 16-17 years of age. At the moment I am...
Dizzy spells and double vision

10/2019 | 3 Comments

Hello there I am 32 years old and was diagnosed with temporal left lobe epilepsy 4.5 years ago, although I have just found out there is also...
short seizures continue

10/2019 | 2 Comments

my son about 5yrs old and used medicine valpoarate,tegrital and frizium 5mg last 4 years but seizures continue please advise me.he has able to learn...
Withdrawl

09/2019 | 2 Comments

So, yeah. I've never really talked to anyone who really knew anything about epilepsy besides my neurologist. I recently was referred to a specialist...
vimpat

09/2019 | 2 Comments

I remember "coming to" in the ambulance. This happened in May and the 31st of last month. The Dr. put me on Vimpat as the neurologist I am going to...
Medication Issues

09/2019 | 1 Comments

Hi all, Im a 26 year old male that has had Epilepsy since February 2016. I had my first seizure in work while a manager of burger king so as you can...

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