HI everyone. I have been diagnosed with epilepsy for about 14 years now. Over the years I have learned that I have a form of catamenial epilepsy. I was on carbamazepine up until September of last year. It was recommended to change to lamotrigine. I notice when I have "seizure activity" it is about the 4th or 5th day of my menstrual cycle. Typically during that time I have complex a partial seizure or 2, however, my main diagnosis was based on a grand mal my parents witnessed when living at home. In January of this year, during my period on my 5th day, I had multiple complex partial seizures and a migraine all day. I lost track of time and woke up scared. Wandering around my house looking for someone. My neurologist upped my meds another 100mg twice a day. I had not had ANY complex partial seizures after this change.
Fast forward to today. My 4th day of period, woke up with a migraine. I had several complex partial seizures while working, so left work early. I had a bad feeling, even my dog was extra clingy (shes very intuitive). I took a shower, and remembered shutting off water and at that point lost track of time. I wandered around in a towel again looking for someone and being scared. I contacted my neurologist and she is recommending I change to Keppra (she recommended this recently as I experience frequent night sweats on lamotrigine).
I cant even express how devastated I am by this. I was seizure free for many many years, and now after my meds I was on pretty much my whole life, I am having to change twice! Very discouraging and really hope this works out. She is having my max dose start at 500 mg twice a day. I am praying this helps.
Anyone have a success rate with Keppra? And major side effects? Trying to get a feel of what I will be getting into.