Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Epilepsy Awareness Club

05/2016 | 0 Comments

Hello, I am a college student who recently inherited the Epilepsy Awareness Club at my university. I was wondering if there is anyone else out there...
about the photosensitive issue

04/2016 | 0 Comments

so hey people i am 20 almost 21 .. i live in libya and i am just 3 months far from finishing 2 years seizure free so my questions is simply .. how do...
Seizure Response Dogs?

04/2016 | 0 Comments

Hi everyone, My name is Laura and I'm 15 years old. I was diagnosed with epilepsy last December. I am not American and in my country, epilepsy...
Medication alternatives

03/2016 | 0 Comments

Hi, I was wondering if anyone has tried CBD oil and what your experience was with it. Does it work?
3 yr old diagnosed with epilepsy

03/2016 | 0 Comments

Hi everyone, My 3 1/2 year old son starting having seizures last August. He had two focal seizures with no known cause and went five months without...
Psychic ability in child with epilepsy

03/2016 | 0 Comments

I have been doing a ton of reading and I am hoping someone here can help me. My daughter is 9 years old. Diagnosed with focal epilepsy at age 2. On...
Ketogenic Diet

03/2016 | 1 Comments

Hi, I am 17 years old and doing a research project on the ketogenic diet and its treatment of epilepsy. I suffer from a form of epilepsy and can...
Support group for kids with PKD?

03/2016 | 0 Comments

Hi all, my 2 (almost 3) year old son most likely has PKD (still trying to sort it out for sure, but it's looking likely). I'm curious - has anyone...
Weird Headaches Please Help Me!

01/2016 | 0 Comments

Hi, I was diagnosed with Epilepsy when I 13 or 14 and, every since then I have been having seizures (and before I was diagnosed). Well, in October of...
Monitors?

12/2015 | 0 Comments

15 year old daughter recently diagnosed with seizures related to her visual impairment. We've seen monitors for seizures like watches. Do those really...
Syncope vs. Seizures

11/2015 | 0 Comments

My son has had approximately a dozen episodes that resemble seizures in the last 3 years. He is four. They occur when he hurts himself. They last only...
How has epilepsy affected you?

10/2015 | 0 Comments

Hey everyone, I am trying to start a fundraiser to raise money for epilepsy research. I would like to include stories from people who have epilepsy or...
Keppra Side Effect Questions

10/2015 | 1 Comments

Hi there! I'm a sixteen year old girl with JME. About a month ago my doctor added 500 mg of Keppra to my medication list, (which includes 750mg of...

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