Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Tics....

01/2018 | 1 Comments

My son is six years old and has had four bouts of tics in his life so far, the first one being at two yrs old. At first it was blinking, now a few...
Help

01/2018 | 2 Comments

I’m 17 now. I’ve had epilepsy since I was 13. I’ve realized how much this has changed my life. I want to connect with others who are struggling, and...
Writing a Book

12/2017 | 0 Comments

Hello Everyone! I am in the process of writing a book that speaks to and about teens with epilepsy. I seek the life stories of those who are currently...
Sound triggering episodes

12/2017 | 1 Comments

Hi, for as long as I can remember I've been having these periods of what I call intrusive thoughts, except I'm 100% certain that that is not what it...
Unafraid

11/2017 | 3 Comments

Hi! I was diagnosed a year ago and I have came a long way and i used to be confused and afraid now i'm unafraidi'm curious about you are you afraid...
Unafraid

11/2017 | 1 Comments

Hi! I was diagnosed a year ago and I have came a long way and i used to be confused and afraid now i'm unafraidi'm curious about you are you afraid...
Muscle Spasms and corrupt doctors?

11/2017 | 1 Comments

I'm 17 years old and I've been diagnosed with epilepsy since the farthest my memory goes, I don't remember a time I didn't have it. I used to have...
New and confused.

10/2017 | 3 Comments

Today I was just diagnosed with epilepsy. I'm 17 and I don't know how to feel.
Worried parents looking for some advice

10/2017 | 1 Comments

Hi, we have a toddler (4 yrs old) who has recently started having seizures. He was a perfectly healthy boy up until this point. We’re new to this site...
Caffeine and Frontal Lobe Seizures

10/2017 | 1 Comments

Hi, I'm wondering if caffeine will effect frontal lobe seizures? I'm ok to caffeine, but I want to take a pill that has like, over 200mg of caffeine...
Undiagnosed for 40 years!

10/2017 | 1 Comments

My seizures started (first noticed) when I was 3yr. old. They were Complex/Partial. MRI's and EEGs showed nothing. So growing up I spent a lot of time...
Seizures while sleeping

08/2017 | 1 Comments

Hello I'm syd I'm 23 years old not long ago I fell asleep at my mates and he tried waking me up when I started waving my arms everywhere I thought...
Teen Recently Diagnosed

07/2017 | 2 Comments

My 15 year old daughter was recently diagnosed with Idiopathic Generalized Epilepsy. Her first tonic seizure was at 12, second 2 years later, then as...
trileptal Hairloss and baldness

06/2017 | 1 Comments

Now im using 600mg trileptal per day.after I start(18 ) my medication my hair start to fall .now I am 21 years old. I have few bald spot in my head. I...
Epilepsy Through A Child's Eyes

06/2017 | 1 Comments

My name is Rachel Skaug, formerly Rachel Kaalberg, and I used to have epileptic seizures as a child. My seizures started at four months old, which was...

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