Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Books for kids with absense seizures?

03/2019 | 2 Comments

Hi, my son is 10 and just been diagnosed with absence seizures. Is there any books that explain these types of seizures well? He also has ADHD and...
New cause to fits

03/2019 | 0 Comments

Hello I have had Epilepsy fits ever since young at 4 years old most of the fits are caused from material being in the way of my nose oxygen I...
Frustrated with my seizure life

03/2019 | 3 Comments

I feel like I'm in a low spot in my life now. Up to now I have had six seizures. It just hits me over and over again. Now I can't even focus in school...
anyone have similar myoclonic jerks?

02/2019 | 1 Comments

Started having seizures at age 16- came out of nowhere. However, I did notice before the first seizure that my teeth were chattering- not intensely...
Childhood Epilepsy Role Model

02/2019 | 0 Comments

Hi! I grew up with epilepsy. It went dormant as I became an adult but came back about 9 years ago in a different form. I suffer from temporal lobe...
Looking for a pen pal

01/2019 | 15 Comments

Hi there! My name is Iris, i'm 22 years old and yup you guessed it... i have epilepsy. I've felt a bit frustrated lately since i feel like no one...
Depakote

01/2019 | 1 Comments

My seven year old has been on depakote for 2 weeks now and I’m not sure I’m liking some of the side effects. If you’ve had a child what were some of...
How I live my life

01/2019 | 2 Comments

Im a high School student who just lives a normal life but differently from others. Sometimes I do have my seizures in school but mine are different...
my son's story with SCN1A

01/2019 | 0 Comments

My son was born in 2016 and he started doing seizures from day 1. he's on Epanutin, Topirate and Lepitam/Kepra. He started walking since he was 2...
My life and epilepsy

01/2019 | 1 Comments

Hi, I have been diagnosed with epilepsy one year ago after I went to numerous doctors and they told me I'm just normal and it's normal for my age. (I...
can anyone relate?

12/2018 | 2 Comments

I am an 18yr old girl diagnosed with epilepsy for only a few months, I’m currently on topamax 100mg daily. Since before I’ve even been diagnosed...
Hello Everyone

10/2018 | 0 Comments

So I’m 16, was diagnosed with Epilepsy at 11. I had 3 surgeries over it. After my third surgery I had to take medication for a while afterwards and my...
Youth Seizure Concerns

10/2018 | 1 Comments

So I'm seventeen, have been a diagnosed epileptic for about three years. Occasional grand-mal/tonic-clonic seizure (and by that I mean about once...
Research purposes

10/2018 | 0 Comments

Hello everyone, my name is Carmen and the first thing I want to say is that I am not epileptic. The second things is that I am a writer (trying to be...
Epilepsy and work

08/2018 | 0 Comments

Good day everyone, I just joined the forum and that's because I've been doing some research on a subject and I haven't been able to find many answers...
Scary

07/2018 | 1 Comments

When I was 12 I was diagnosed with grand mal epilepsy. My first horrifying expirence was in a Mexican restaurant with my whole family. I was eating...
Memory issue first time ever

06/2018 | 0 Comments

Had 2 Gran Mal nearly 2 months ago and my kevtam dosage was doubled. Today was at work having planned my next 2 lessons when walking to them I...

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