Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Traumatized from my seizure experience

08/2019 | 2 Comments

For the last year and a half, I have had five seizures. Since then, I have felt like such a mess; my grades got worse, my ADHD got worse, I made a...
Paranoia or just side effects

08/2019 | 1 Comments

For quite some time, I have taken trileptal for as a seizure medication. The past few weeks I have been feeling dizzy, anxious, and really just out of...
Second Opinion re: Driving?

07/2019 | 0 Comments

Hi-- My kiddo (16.5) was on the cusp of getting his driver's license when we learned that our neurologist required an overnight v-EEG before he would...
JME

06/2019 | 2 Comments

Hello, my name is Tom. I am 19 years old and have had JME for five years with only three grand mals. As the morning jerks have gotten worse in the...
Graduation tonight and he had a seizure.

05/2019 | 2 Comments

My son started having seizures 2 years ago just after his 16th birthday. The doctors tell us it's cortical dysplasia. Tonight was his high school...
Is it all in my head?

05/2019 | 2 Comments

Hello:) I’m 17 years old and I’ve been having these episodes for almost a year now. Often times I will zone out and everything around me will slow...
Epilepsy vs Keto diet

05/2019 | 3 Comments

Hi! I’m a teenaged girl with Temporal Lobe Epilepsy. I’m doing a research paper on Epilepsy and how the Keto diet effects seizures and symptoms. If...
Seizure dreams?

05/2019 | 4 Comments

I havent had a seizure (grand mal) since Oct. 2018, but lately I've been having these dreams where I can feel my body getting weak and stiff, in the...
Am I having seizures

05/2019 | 2 Comments

First off, i'm sorry if this post is going to be a little all over the place, i'm just in a really anxious mood. Whenever I was a little kid I would...
I have a few questions...

04/2019 | 2 Comments

Hello! I am a sixteen year old girl with myoclonic epilepsy. I have a few questions that I'm worried to ask others... 1. I am taking Keppra at the...
Lamotrigine Not Working

04/2019 | 4 Comments

I have juvenile myoclonic epilepsy. So my neuro thought I grew out of JME so I went off my meds... fast forward months later I have a grand mal so my...
Worried girl with seizures

04/2019 | 0 Comments

Hello, for the past two months I've been having almost daily seizures. They are absence seizures and I usually just have muscle twitches, can't talk...
worried mum /confused son

04/2019 | 4 Comments

Hi, im a worried sick mum desperatley seeking some help/guidance & positive vibes from anyone! My 17 yr old son had a seizure through the night 1 week...
Have trouble day

04/2019 | 0 Comments

So I went to school then I did have it but I harder words mean a lot to to hard
Skipping school because of seizures

04/2019 | 1 Comments

I’m a 17 year old in high school and I’ve been recently, for the past 2 months, been dealing with guilt because I skip school a lot because of my...
Massive headaches and nausea

04/2019 | 1 Comments

Hi my name is Ugne and I’m 17 years old. My epilepsy is classified as severe since I’ve changed medications about 5 times now. For the past two or...
The Story of a Life with Epilepsy

03/2019 | 0 Comments

Hi, my name is Faith and I was adopted at the age of two. I had a stroke either while I was born or after I was born. This stroke caused me to have...
Living Independantly

03/2019 | 0 Comments

Hi, I am 15 years old and I have epilepsy. I am starting to want to be more independent and in the near future live on my own. Right now I only have...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.