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My story..
Wed, 09/04/2019 - 06:15Topic: Living With Epilepsy - Youth
I was diagnosed with epilepsy on the1st September 2009, and I have been on many drugs, including epilim, Keppra, zonisamide, perampanel and many more. I was wondering what tablets work best for you guys, or if you have tried CBD or any operations how they went/affected you.
Comments
Like the ConnectHelp
Submitted by birdman on Wed, 2019-09-04 - 20:51
Like the ConnectHelp mentioned treatment and seizures vary so much. But I will share that I have tried 17 different drugs for seizures in my life. Surgeries that I have had include resection of part of the right temporal lobe, VNS, and now RNS. I'm still having seizures but am hopeful that long term therapy with RNS offers the greatest potential of all.Mike
Hi katie.elson¸Thanks so much
Submitted by Anonymous on Wed, 2019-09-04 - 09:50
Hi katie.elson¸Thanks so much for sharing your story. Treatment varies for each individual, so it’s important that you consult with your healthcare team to determine what individual treatment is best for you. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf To learn more about seizure medications and additional treatment options please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-medication-listhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy You can learn more about CBD oil, here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsy My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but for managing medications, side effects, recording your medical history, moods, triggers,or other personal experiences, which can be shared with your healthcare team. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find& give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline