Community Forum Archive

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

How To Live My Life

09/2019 | 6 Comments

Hi. I have epilepsy. I'm young and about to graduate college. I don't have the ability to drive(epilepsy), and I am very poor, and I have no family to...

09/2019 | 4 Comments

First Seizure in 7 yrs

09/2019 | 2 Comments

So about 5 days ago I had my first seizure in 7 years, out of work til I see a knee specialist and I am terrified they are going to report this...
PNES diagnosis- is it a joke?

08/2019 | 7 Comments

I did an overnight VEEG test at Yale in June, and didn't have any seizures. After I was there one night, the neurologist walks in with his entourage...
Are these seizures?

08/2019 | 1 Comments

Okay a little back ground first. I was diagnosed with JME after an EEG showed spike waves at 4hz. I get complex partials were I feel really intense...
Myoclonic seizures and exercise--

08/2019 | 1 Comments

Hello! I am curious about whether or not anyone has experienced anything similar to this (and am very welcome to tips and tricks to quell it): I've...
Medication Withdrawal Questions

08/2019 | 2 Comments

Hi there! I've got a few questions about people who have JME and their experiences with AEDs, more specifically, with medication withdrawal. A bit of...
Seizure Tracking Device

08/2019 | 3 Comments

I'm starting college next month and I was given a suggestion to wear a seizure tracking device. Does anyone know where you can get one? I heard there...
Struggling with epilepsy symptoms

08/2019 | 1 Comments

I'm 27 and have a history of grand mal seizures, but I haven't had a seizure since 2013, when I was put on Kepra. Although I don't have seizures...
Our story

08/2019 | 1 Comments

We our familiy that has struggled with epilepsy for 4 decades plus. Begiinning with myself at a young age. Reaaly didn't realize how much that...

08/2019 | 1 Comments

I suffered with herpes encephalitis at around 2 years old and made an exceptional recovery. Over the years up until I was about 12 I had these deja by...

07/2019 | 1 Comments

Hi all,my 15yr old daughter was just diagnosed with juvenile myoclonic and though she is now 90% seizure free on this drug, her mood is one of someone...
Losing hope

07/2019 | 2 Comments

My wife and I have been together almost 3 years. She's 21 and I'm 20. We have a 1 year old together and a 4 year old just starting school (I'm her...

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