Community Forum Archive
Topic: Living With Epilepsy - Adults
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
09/2019 | 6 Comments
Hi. I have epilepsy. I'm young and about to graduate college. I don't have the ability to drive(epilepsy), and I am very poor, and I have no family to...
09/2019 | 2 Comments
So about 5 days ago I had my first seizure in 7 years, out of work til I see a knee specialist and I am terrified they are going to report this...
08/2019 | 2 Comments
Hi all. My 58y old brother was diagnosed with IGE after 3 grand mal seizures in 2 weeks. He's had additional seizures, on KEppra 1000mg twice daily...
08/2019 | 7 Comments
I did an overnight VEEG test at Yale in June, and didn't have any seizures. After I was there one night, the neurologist walks in with his entourage...
08/2019 | 1 Comments
Okay a little back ground first. I was diagnosed with JME after an EEG showed spike waves at 4hz. I get complex partials were I feel really intense...
08/2019 | 3 Comments
Hello everyone, a week ago my husband had his first tonic-clonic seizure. It has been legitimately the scariest, most anxious week of my life. They...
08/2019 | 3 Comments
Hi everyone, I am a 29 year old female and I had my first ever tonic clonic seizure on 7/21. I had an MRI and CT done immediately and both came back...
08/2019 | 1 Comments
Hello! I am curious about whether or not anyone has experienced anything similar to this (and am very welcome to tips and tricks to quell it): I've...
08/2019 | 2 Comments
Hi there! I've got a few questions about people who have JME and their experiences with AEDs, more specifically, with medication withdrawal. A bit of...
08/2019 | 3 Comments
I'm starting college next month and I was given a suggestion to wear a seizure tracking device. Does anyone know where you can get one? I heard there...
08/2019 | 3 Comments
I usually find myself going bed late and waking up late and wasting my time without any healthy income, I've decided to start going to gym and I...
08/2019 | 1 Comments
I'm 27 and have a history of grand mal seizures, but I haven't had a seizure since 2013, when I was put on Kepra. Although I don't have seizures...
08/2019 | 4 Comments
Hi everone, This is my first time posting on this forum. I have drug-resistant epilepsy with focal seizures which happen 3-5 times a week right now. I...
08/2019 | 3 Comments
Hi all, I wanted to ask if anyone here remembers visions/hallucinations from their 'dream state'? If so, what were they like?
08/2019 | 1 Comments
We our familiy that has struggled with epilepsy for 4 decades plus. Begiinning with myself at a young age. Reaaly didn't realize how much that...
08/2019 | 1 Comments
I suffered with herpes encephalitis at around 2 years old and made an exceptional recovery. Over the years up until I was about 12 I had these deja by...
07/2019 | 1 Comments
My name is Ken Koskela. When I was 13 years old, my family moved from the Chicago suburbs to a rural community near Galena, Illinois. This area is...
07/2019 | 1 Comments
Hi all,my 15yr old daughter was just diagnosed with juvenile myoclonic and though she is now 90% seizure free on this drug, her mood is one of someone...
07/2019 | 2 Comments
My wife and I have been together almost 3 years. She's 21 and I'm 20. We have a 1 year old together and a 4 year old just starting school (I'm her...