Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Sugar Trigger

10/2019 | 1 Comments

I know what triggers my seizures, but that list has grown the older I get (in my 40's now). I discovered recently that when I have too much sugar...
Seizure

10/2019 | 1 Comments

I found it hard to even get up this morning when I finally managed I fell up against the wall. I got to the bathroom but I did end up losing control...
Scared of SUDEP

10/2019 | 3 Comments

I’m a 29 year old male , I had my first convulsion when I was 15 taken to the hospital they said I had epilepsy. I take depakote 500mg at night to...
New to epilepsy

10/2019 | 4 Comments

I just saw my neurologist for the first time. He told me that I was unconscious when the EMTs came and when I came to I was fighting them because I...
seizures and no one is around to help?

10/2019 | 1 Comments

I'm relatively new to epilepsy as it only began after severe head trauma 3 years ago. I've been lucky in that all my seizures have been at home in the...
I need your help

10/2019 | 2 Comments

I need your help. My wife is recently 30 years old and 3 years ago she had her first seizure (I thought it was simply fainting). From that time she...
Todd's Palsy/focal seizures

10/2019 | 1 Comments

When I have a seizure coming on I notice my thinking is slow, vision is hazzy/ aura, my left arm and leg sometimes becomes very weak and at times...
Medic alert

10/2019 | 2 Comments

I got a medic alert tattoo and it is wonderful. The jewelry is ugly and the chains kept breaking so I solved the whole problem and it's pretty. The...
New to all of this

10/2019 | 5 Comments

I am a 30 year old mother of a 3 year old and 1 year old. About a month ago I had a grand mal seizure that scared my children and husband to death. I...
Daughter with confusing seizures

10/2019 | 2 Comments

Hi, I have a 21 year old that has a variety of special needs. These include autism, anxiety, LD, tourette's syndrome, OCD, and now seizures. Prior to...
Nocturnal (sleep) seizures and CBD oil.

10/2019 | 0 Comments

Ive had seizures in my sleep since i was in 3rd or 4rd grade. I am now 37yrs old, been on Tegretol XR since then. The medication controls my seizures...
EEG Understanding

09/2019 | 2 Comments

My daughter is 25. She started having seizures at 1 yo. She is taking zonegran which has worked since she was 15 with only one breakthrough seizure at...
Weird deja vu stoned feeling

09/2019 | 3 Comments

Trying to post here but it keeps saying "Sorry invalid content". Just seeing if the fault is in the message...
Seizures and psychedelic experience

09/2019 | 2 Comments

I need help. I've been more of a public setting now that I have a job at a Marijuana Dispensary (of all places) Well I've been having SPS/auras and I...
Nocturnal Seizures

09/2019 | 9 Comments

Hi all, Im a 26 year old male that has had Epilepsy since February 2016. I had my first seizure in work while a manager of burger king so as you can...
Epilepsy f*cks my...

09/2019 | 3 Comments

Epilepsy f*cks my life, I have had it since I was a little kid ~4 years (I'm 28 today). My life have sucked whole life, my epilepsy have always been a...
I feel like I'm drowning.

09/2019 | 3 Comments

Hi. My name is Juliana. I am 24 and have had epilepsy since I was 6. I have epilepsy in the form of twitches and zoning out during the day and once a...

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