Community Forum Archive
Topic: Living With Epilepsy - Adults
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
12/2019 | 5 Comments
Hello, This is hard for me to write about but I am in desperate need of help. I have seizures and when I come out of seizures (when I am still...
12/2019 | 3 Comments
At 59 I am new to having seizures. Most of mine have been tonic-clonic seizures with a few focal aware. I have recently figured out my aura. I get...
12/2019 | 2 Comments
Hello: I have a daughter (24). She has intractable epilepsy. We are looking for a thriving happy, community in which she can live safely. She is a...
12/2019 | 3 Comments
Hello Everyone, have a question ? I have a son that has been having seizures for the last 10 years and for the last 5 years we have been without my...
12/2019 | 2 Comments
Hi. This is my 1st post... At the age of 40, I had my first (observed) absence seizure. No one knew at that time what it was. I’ve had every test...
12/2019 | 2 Comments
I've had focal seizures (and a few tonic-clonic) since I was 11, I'm now 23. Since they put me on Keppra when I was about 13, I've just felt, at best...
12/2019 | 4 Comments
I can't leave the house unintended because of my seizure frequency. The only other ONE person in my life, my wife, does not have car, license or...
12/2019 | 2 Comments
Hi I have recently developed what I am 99% sure is TEMPORAL LOBE EPILEPSY Can people with this please just tell me their experience of developing it...
12/2019 | 1 Comments
I am not really sure if I’m having an absence or focal seizure. But different times throughout my day for example, sometimes just one eye will feel...
12/2019 | 1 Comments
I am curious to hear anyone's experience with MDMA (as therapy) while taking lamotrigine. I am currently on 100mg of lamictal for "undiagnosed"...
12/2019 | 2 Comments
Hi! I only have seizures in my sleep and as I sleep alone, I never really knew what happened, etc. However, I had a friend see one where I stood up...
12/2019 | 3 Comments
I have had epilepsy for 13 years now (I’m 25) I suffer from tonic clonic seizures (that seem to happen 40 minutes after waking up) so I only know I’ve...
12/2019 | 1 Comments
Hello everyone, not sure if someone might have similar or saw similar symptoms and can help me a bit. I am almost 30 yrs old and had epilepsy since...
12/2019 | 3 Comments
Hey everyone, I’ve been living with Juvenile Myoclonic Epilepsy for about 13 years now. Seizures are under control but I’m really learning more about...
12/2019 | 7 Comments
Hi all, I have been out of work for nearly a year and a half now and its starting to effect me bringing depression on. I have passed 3 interviews for...
11/2019 | 6 Comments
My bff has this and wants to work but also can't drive and I was wondering if anybody could throw any ideas at me for jobs that she could do that...
11/2019 | 2 Comments
I wear high socks because cold air that hits my ankles/feet triggers a seizure. Nothing serious, just an aura. I’m just looking for somebody that...
11/2019 | 2 Comments
I have MTLE (mesial temporal lobe epilepsy) and for a while now I've noticed having difficulty when speaking. For the longest time I had trouble...
11/2019 | 1 Comments
Recently I've had a strange part of me where I just want to be alone in my home. I don't want to go anywhere outside of the house. I'm not afraid of...
11/2019 | 4 Comments
Hi everyone. I am a black female who is almost 30 and this is my story. I had panic and anxiety attacks for a couple of years now. I worry a lot so I...