Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Embarrassed

12/2019 | 5 Comments

Hello, This is hard for me to write about but I am in desperate need of help. I have seizures and when I come out of seizures (when I am still...
That butterfly feeling

12/2019 | 3 Comments

At 59 I am new to having seizures. Most of mine have been tonic-clonic seizures with a few focal aware. I have recently figured out my aura. I get...
Seeking an Epilepsy Community

12/2019 | 2 Comments

Hello: I have a daughter (24). She has intractable epilepsy. We are looking for a thriving happy, community in which she can live safely. She is a...
resources

12/2019 | 3 Comments

Hello Everyone, have a question ? I have a son that has been having seizures for the last 10 years and for the last 5 years we have been without my...
Adult Onset Absence Seizures

12/2019 | 2 Comments

Hi. This is my 1st post... At the age of 40, I had my first (observed) absence seizure. No one knew at that time what it was. I’ve had every test...
When do the cons outweigh the pros?

12/2019 | 2 Comments

I've had focal seizures (and a few tonic-clonic) since I was 11, I'm now 23. Since they put me on Keppra when I was about 13, I've just felt, at best...
Cabin fever is real

12/2019 | 4 Comments

I can't leave the house unintended because of my seizure frequency. The only other ONE person in my life, my wife, does not have car, license or...
Please tell me your experience of TLE

12/2019 | 2 Comments

Hi I have recently developed what I am 99% sure is TEMPORAL LOBE EPILEPSY Can people with this please just tell me their experience of developing it...
Symptoms beforehand

12/2019 | 1 Comments

I am not really sure if I’m having an absence or focal seizure. But different times throughout my day for example, sometimes just one eye will feel...
MDMA Therapy while taking Lamictal

12/2019 | 1 Comments

I am curious to hear anyone's experience with MDMA (as therapy) while taking lamotrigine. I am currently on 100mg of lamictal for "undiagnosed"...
Standing up before seizure?

12/2019 | 2 Comments

Hi! I only have seizures in my sleep and as I sleep alone, I never really knew what happened, etc. However, I had a friend see one where I stood up...
When will fear go away?

12/2019 | 3 Comments

I have had epilepsy for 13 years now (I’m 25) I suffer from tonic clonic seizures (that seem to happen 40 minutes after waking up) so I only know I’ve...
hyper active movements joints cracking

12/2019 | 1 Comments

Hello everyone, not sure if someone might have similar or saw similar symptoms and can help me a bit. I am almost 30 yrs old and had epilepsy since...
JME and recreational marijuana

12/2019 | 3 Comments

Hey everyone, I’ve been living with Juvenile Myoclonic Epilepsy for about 13 years now. Seizures are under control but I’m really learning more about...
Working

12/2019 | 7 Comments

Hi all, I have been out of work for nearly a year and a half now and its starting to effect me bringing depression on. I have passed 3 interviews for...
Hi Can anybody help me with job ideas

11/2019 | 6 Comments

My bff has this and wants to work but also can't drive and I was wondering if anybody could throw any ideas at me for jobs that she could do that...
Cold Feet Trigger Seizure

11/2019 | 2 Comments

I wear high socks because cold air that hits my ankles/feet triggers a seizure. Nothing serious, just an aura. I’m just looking for somebody that...
Trouble Speaking

11/2019 | 2 Comments

I have MTLE (mesial temporal lobe epilepsy) and for a while now I've noticed having difficulty when speaking. For the longest time I had trouble...
new problems

11/2019 | 1 Comments

Recently I've had a strange part of me where I just want to be alone in my home. I don't want to go anywhere outside of the house. I'm not afraid of...
Feeling lost Need Inspiration

11/2019 | 4 Comments

Hi everyone. I am a black female who is almost 30 and this is my story. I had panic and anxiety attacks for a couple of years now. I worry a lot so I...

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