Community Forum Archive
Topic: Living With Epilepsy - Adults
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
01/2020 | 1 Comments
Hi everyone for the past few years., I'm 26 I've been having this weird spacy feelings. I get sweaty and feel like nausea. Also I get a tingling...
01/2020 | 2 Comments
Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met...
01/2020 | 2 Comments
I recently had a grand mal that sent me into a spiral. I can't sleep, I don't want to eat, I want to scream all the time, and I both want to be alone...
01/2020 | 1 Comments
I was diagnosed with Grand Mal seizures back in 2007, which are controlled by carbamazepine. Luckily, the only time I've had breakthrough seizures is...
01/2020 | 4 Comments
The least atlked about part of a seizure disoder , anyone experiance mental health problems with misdiagnosis
01/2020 | 3 Comments
Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a...
01/2020 | 1 Comments
Hi everyone! I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type...
01/2020 | 1 Comments
Hey everyone. First post. I’ll spare you the backstory, but to clarify I have juvenile myoclonic epilepsy...my wife does not. She is carrying our...
01/2020 | 2 Comments
Hi everybody, I have been on here a couple of times and received some great advice so since my last episode kept me in hospital for a week I thought I...
01/2020 | 5 Comments
Is it possible to be conscious during a grand mal seizures and what does it feel to be conscious during one? I've been researching into it since this...
01/2020 | 1 Comments
I don't know what's causing these seizures but they just started happening & I'm scared. I've had test done & nobody can tell me why or how. I loose...
01/2020 | 3 Comments
About 3 months ago, I turned 49, and in 3 months, I will have had epilepsy for 49 years. Just about 10 days ago, living with epilepsy has turned...
01/2020 | 1 Comments
Hi All, My story is a bit different and long, so please bear with me. I am 29 years old and have been seizure free since I was 9. I had a minor head...
01/2020 | 2 Comments
I was 8 years old when I started having seizures. I would have them about every other week up until I turned 20 and then they became more frequent...
01/2020 | 3 Comments
Hello all, First time posting, though I've thought about it many times. I've been living with Tonic-Clonic seizures for many years now, they've...
01/2020 | 4 Comments
When u call 911 for help u need help but when ppl are not trained on epilepsy cause ppl don’t look at this as a big deal this is a big problem
12/2019 | 3 Comments
Hi there I’ve had TLE since I was around 5, started with grand mal, now I always have partial seizures. Not had any for about 10 years but just...
12/2019 | 0 Comments
Hi everyone, I was diagnosed of Generalised intermittent epileptiform discharges and was on medication, Levera 500. However, I couldn't take the side...
12/2019 | 2 Comments
A friend came by to call today To tell me it was near. That I would soon be in its grasp And it could be severe Her presence is a warning sign A...
12/2019 | 1 Comments
A few days before Christmas I had what we think was a first time seizure. Before I get to that, a little personal background. I'm 42, male (white if...