Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Aura or something else?

01/2020 | 1 Comments

Hi everyone for the past few years., I'm 26 I've been having this weird spacy feelings. I get sweaty and feel like nausea. Also I get a tingling...
Support Group for Supporters

01/2020 | 2 Comments

Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met...
Post-Ictal Depression and Relationships

01/2020 | 2 Comments

I recently had a grand mal that sent me into a spiral. I can't sleep, I don't want to eat, I want to scream all the time, and I both want to be alone...
Suicide

01/2020 | 4 Comments

The least atlked about part of a seizure disoder , anyone experiance mental health problems with misdiagnosis
What does your aura feel like

01/2020 | 3 Comments

Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a...
Seizure relapse/ New seizure onset?

01/2020 | 1 Comments

Hi everyone! I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type...
Baby on the Way

01/2020 | 1 Comments

Hey everyone. First post. I’ll spare you the backstory, but to clarify I have juvenile myoclonic epilepsy...my wife does not. She is carrying our...
Sseizures and AKI ??

01/2020 | 2 Comments

Hi everybody, I have been on here a couple of times and received some great advice so since my last episode kept me in hospital for a week I thought I...
Conscious during grand mal?

01/2020 | 5 Comments

Is it possible to be conscious during a grand mal seizures and what does it feel to be conscious during one? I've been researching into it since this...
Turned 40! 6 seizures

01/2020 | 1 Comments

I don't know what's causing these seizures but they just started happening & I'm scared. I've had test done & nobody can tell me why or how. I loose...
Am I getting too old?

01/2020 | 3 Comments

About 3 months ago, I turned 49, and in 3 months, I will have had epilepsy for 49 years. Just about 10 days ago, living with epilepsy has turned...
How to Explain?

01/2020 | 1 Comments

Hi All, My story is a bit different and long, so please bear with me. I am 29 years old and have been seizure free since I was 9. I had a minor head...
Driving and Epilepsy

01/2020 | 2 Comments

I was 8 years old when I started having seizures. I would have them about every other week up until I turned 20 and then they became more frequent...
The River Runs Dry?

01/2020 | 3 Comments

Hello all, First time posting, though I've thought about it many times. I've been living with Tonic-Clonic seizures for many years now, they've...
I don’t think ems is trained

01/2020 | 4 Comments

When u call 911 for help u need help but when ppl are not trained on epilepsy cause ppl don’t look at this as a big deal this is a big problem
My Friend Aura

12/2019 | 2 Comments

A friend came by to call today To tell me it was near. That I would soon be in its grasp And it could be severe Her presence is a warning sign A...
Possible first seizure

12/2019 | 1 Comments

A few days before Christmas I had what we think was a first time seizure. Before I get to that, a little personal background. I'm 42, male (white if...

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