Community Forum Archive

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Aura or something else?

01/2020 | 1 Comments

Hi everyone for the past few years., I'm 26 I've been having this weird spacy feelings. I get sweaty and feel like nausea. Also I get a tingling...
Support Group for Supporters

01/2020 | 2 Comments

Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met...
Post-Ictal Depression and Relationships

01/2020 | 2 Comments

I recently had a grand mal that sent me into a spiral. I can't sleep, I don't want to eat, I want to scream all the time, and I both want to be alone...
Suicide

01/2020 | 4 Comments

The least atlked about part of a seizure disoder , anyone experiance mental health problems with misdiagnosis
What does your aura feel like

01/2020 | 3 Comments

Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a...
Seizure relapse/ New seizure onset?

01/2020 | 1 Comments

Hi everyone! I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type...
Baby on the Way

01/2020 | 1 Comments

Hey everyone. First post. I’ll spare you the backstory, but to clarify I have juvenile myoclonic epilepsy...my wife does not. She is carrying our...
Sseizures and AKI ??

01/2020 | 2 Comments

Hi everybody, I have been on here a couple of times and received some great advice so since my last episode kept me in hospital for a week I thought I...
Conscious during grand mal?

01/2020 | 5 Comments

Is it possible to be conscious during a grand mal seizures and what does it feel to be conscious during one? I've been researching into it since this...
Turned 40! 6 seizures

01/2020 | 1 Comments

I don't know what's causing these seizures but they just started happening & I'm scared. I've had test done & nobody can tell me why or how. I loose...
Am I getting too old?

01/2020 | 3 Comments

About 3 months ago, I turned 49, and in 3 months, I will have had epilepsy for 49 years. Just about 10 days ago, living with epilepsy has turned...
How to Explain?

01/2020 | 1 Comments

Hi All, My story is a bit different and long, so please bear with me. I am 29 years old and have been seizure free since I was 9. I had a minor head...
Driving and Epilepsy

01/2020 | 2 Comments

I was 8 years old when I started having seizures. I would have them about every other week up until I turned 20 and then they became more frequent...
The River Runs Dry?

01/2020 | 3 Comments

Hello all, First time posting, though I've thought about it many times. I've been living with Tonic-Clonic seizures for many years now, they've...
I don’t think ems is trained

01/2020 | 4 Comments

When u call 911 for help u need help but when ppl are not trained on epilepsy cause ppl don’t look at this as a big deal this is a big problem
My Friend Aura

12/2019 | 2 Comments

A friend came by to call today To tell me it was near. That I would soon be in its grasp And it could be severe Her presence is a warning sign A...
Possible first seizure

12/2019 | 1 Comments

A few days before Christmas I had what we think was a first time seizure. Before I get to that, a little personal background. I'm 42, male (white if...

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